Alternating Hemiplegia of Childhood FoundationAlternating Hemiplegia of Childhood Foundation

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Brittany Deluke Interview about AHC

Posted on January 31, 2013

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Brittany Deluke a beautiful 24 yo with AHC and her parents and sister were interviewed on Fox TV Orlando. They did a great job expressing what it’s like having AHC. Brittany’s Interview  

 Category: AHCF In the News, Foundation Updates, News      Tags:

Rock the Reel News Article

Posted on January 29, 2013

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Click here  for the Rock the Reel News Article written about the event in honor of Kiley Andrasco

 Category: AHCF In the News, News      Tags:

2012 Bridge Grant Updates

Posted on January 29, 2013

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1/8/2013 – Final Report Aim 1: Identify key genes and mechanisms causing AHC, ensure pathophysiologic studies to prove functional relevance of mutations identified, perform genotype/phenotype correlations, help ensure widespread dissemination of study results, identify potential therapeutic targets in… Read More

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Rare Disease Day 2013

Posted on January 18, 2013

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February 28, 2013 is Rare Disease day!  Help AHC be heard in the Rare Disease Community! Sharing experiences helps people understand what it is like to live with a rare disease. Go here for ideas and to share your story… Read More

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January 18th – International AHC Day!

Posted on January 18, 2013

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Join us in celebrating International AHC Day! One year ago today, the ATP1A3 gene that is a cause of AHC was discovered. Each year, we will celebrate our past accomplishments and look foward to those goals set by… Read More

 Category: Foundation Updates      Tags:

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