AHCF signs letter opposing changes to Orphan Drug Act

As a Member Organization of NORD,  AHCF  has signed a letter to the House Ways & Means Committee and Senate Finance Committee opposing measures to reduce the tax credit as one of the incentives of the Orphan Drug… Read More

2013 AHCF Grant awarded to Vanderbilt University

The AHCF Board is pleased to announce that we have awarded the following grant to Vanderbilt University

Great Non Profits Needs your review!

Please take 2 minutes to review us for the GreatNonprofits Top-Rated Awards for 2013! http://greatnonprofits.org/reviews/alternating-hemiplegia-of-childhood-foundation-inc 

Family Hopes Fundraiser will bring awareness to their child’s disease

Read the full article here http://bcene.ws/135uU7P

AHCF receives donation of $169,000!

A very generous donor who wishes to remain anonymous has given AHCF $169,000 to accelerate ongoing AHC research!

July Newsletter is Here!

2013 July Newsletter Read about the latest news and activities from the Foundation and meet our newest member of the Medical Advisory Board, Dr Mary Zupanc.