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AccountingDepartment.com Announces Support Of Rare Disease Day 2014

Posted on February 28, 2014

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AccountingDepartment.com, long time supporter and fund raiser for the Alternating Hemiplegia of Childhood Foundation, announced support of Rare Disease Day on February 28, 2014. Thanks to Bill Gerber AccountingDepartment.com co-founder for another great awareness article for Sean and AHC.

 Category: AHCF In the News, Foundation Updates, News      Tags:

Hodes’ featured in news story for Rare disease day

Posted on February 28, 2014

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Paul and Rene Hodes, of Shrub Oak, hope raising awareness of AHC will help find cure is the title of a news story by channel 12 news of Westchester county, NY. The Hodes’ and their daughter Lisa were… Read More

 Category: AHCF In the News, Foundation Updates, News      Tags:

New AHC article from the French Association

Posted on February 27, 2014

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Congratulations to Dominique Poncelin and the French Association on the publication of their study regarding the burden of caregivers in AHC. Caregiver’s burden and psychosocial issues in alternating hemiplegia of childhood Original Research Article: European Journal of Paediatric Neurology,… Read More

 Category: Foundation Updates      Tags:

Vanderbilt opens AHC Clinic

Posted on February 26, 2014

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The AHC Foundation is thrilled to announce the opening of the AHC Clinic at Monroe Carell Jr. Children’s Hospital at Vanderbilt. Under the Direction of Dr. Kevin Ess, Chief of the Division of Pediatric Neurology, the clinic will… Read More

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Recent AHC related articles

Posted on February 6, 2014

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Due to the advent of next-generation sequencing, the field of AHC genetics has been evolving very rapidly over the past two years. Over the last month, five very noteworthy articles were published. Great work is being done to… Read More

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AHCF granted GuideStar Bronze seal

Posted on February 1, 2014

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AHCF is pleased to announce that we have met the requirements and been granted the GuideStar Bronze Seal. Look for us to attain the silver seal in the next few months and then it’s Gold!!

 Category: Foundation Updates      Tags:

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