Announces Support Of Rare Disease Day 2014, long time supporter and fund raiser for the Alternating Hemiplegia of Childhood Foundation, announced support of Rare Disease Day on February 28, 2014. Thanks to Bill Gerber co-founder for another great awareness article for Sean and AHC.

Hodes’ featured in news story for Rare disease day

Paul and Rene Hodes, of Shrub Oak, hope raising awareness of AHC will help find cure is the title of a news story by channel 12 news of Westchester county, NY. The Hodes’ and their daughter Lisa were… Read More

New AHC article from the French Association

Congratulations to Dominique Poncelin and the French Association on the publication of their study regarding the burden of caregivers in AHC. Caregiver’s burden and psychosocial issues in alternating hemiplegia of childhood Original Research Article: European Journal of Paediatric Neurology,… Read More

Vanderbilt opens AHC Clinic

The AHC Foundation is thrilled to announce the opening of the AHC Clinic at Monroe Carell Jr. Children’s Hospital at Vanderbilt. Under the Direction of Dr. Kevin Ess, Chief of the Division of Pediatric Neurology, the clinic will… Read More

Recent AHC related articles

Due to the advent of next-generation sequencing, the field of AHC genetics has been evolving very rapidly over the past two years. Over the last month, five very noteworthy articles were published. Great work is being done to… Read More

AHCF granted GuideStar Bronze seal

AHCF is pleased to announce that we have met the requirements and been granted the GuideStar Bronze Seal. Look for us to attain the silver seal in the next few months and then it’s Gold!!