Alternating Hemiplegia of Childhood FoundationAlternating Hemiplegia of Childhood Foundation

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July Family Newsletter

Posted on July 30, 2014

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  As I reflect on the success of the family meeting, I am proud of how this meeting was truly amazing! I love reconnecting with families, meeting new families and am always humbled by your presence. The family… Read More

 Category: Foundation Updates, News, Newsletters      Tags:

St. Joseph’s Children’s Hospital clinic wins federal innovation grant

Posted on July 29, 2014

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TAMPA — Like many teenagers, Caroline West needed to have her wisdom teeth extracted. But Caroline, 17, has a rare genetic condition known as alternating hemiplegia of childhood that has left her with severe physical and mental disabilities.

 Category: AHCF In the News, News      Tags:

Siblings – Part 1

Posted on July 22, 2014

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As parents, we spend a lot of time dealing with our AHC children.  As a result, our other children may feel that their own needs have a lower priority to that of their AHC sibling.  In 2012, we… Read More

 Category: AHC 365 Blog, Family      Tags:

Fund Raising Post

Posted on July 22, 2014

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Fund Raising is fun.  Lorem ipsum dolor sit amet, consectetur adipisicing elit, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Ut enim ad minim veniam, quis nostrud exercitation ullamco laboris nisi ut aliquip ex ea… Read More

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Volunteer Post

Posted on July 22, 2014

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We love Volunteers because they are free. Lorem ipsum dolor sit amet, consectetur adipisicing elit, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Ut enim ad minim veniam, quis nostrud exercitation ullamco laboris nisi ut aliquip… Read More

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Family Post

Posted on July 22, 2014

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Family Post Lorem ipsum dolor sit amet, consectetur adipisicing elit, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Ut enim ad minim veniam, quis nostrud exercitation ullamco laboris nisi ut aliquip ex ea commodo consequat. Duis… Read More

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Healthy Post

Posted on July 22, 2014

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Healthy kids are good kids.  Lorem ipsum dolor sit amet, consectetur adipisicing elit, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Ut enim ad minim veniam, quis nostrud exercitation ullamco laboris nisi ut aliquip ex… Read More

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Independence

Posted on July 10, 2014

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I hope everyone enjoyed Independence Day.  Independence… a word we take for granted on so many levels.  As parents, our goal is to make our children as independent as possible – ALL of our children.  Of course, independence… Read More

 Category: AHC 365 Blog      Tags:

AHCF is Blogging!

Posted on July 3, 2014

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Welcome to our new Blog. Lynn Egan will be blogging about things that affect AHC families and would love to  hear your comments and ideas! The more dialog the better!!  Check the blog often and join the conversation!… Read More

 Category: Foundation Updates, News      Tags:

Welcome to AHC 365!

Posted on July 3, 2014

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Welcome to AHC 365!  The title speaks for itself… we deal with the effects of AHC each and every day. It has been a few days since everyone returned home and I hope your travels were uneventful.  As always, I… Read More

 Category: AHC 365 Blog      Tags:

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