It is Rare Disease Day!  The AHCF has been busy working on behalf of all AHC kids. This month’s newsletter outlines some of our recent work, and a few highlights to our future as a community.  A message… Read More

On February 15 the New Jersey Fox 29 station published an interview with Emilia Schalick and her family.  A great interview that will certainly result in greater awareness of our rare disease.  Thank you for putting yourselves out there for… Read More