There are 6,000+ rare diseases. AHC was first noted in the 1970s; described as an unusual disorder in eight children who demonstrated intermittent episodes of weakness, affecting first one side of the body, then the other, with onset… Read More

The Race to End AHC looks different this year, and so does our gear! Visit the store to check out this year’s new t-shirt look and stock up on some classics like bandanas, car magnets, and the fan… Read More

The last two years we’ve had incredible race day parties all over the world. We still want to celebrate again together this year, just at the finish line instead! Gather your family and friends to celebrate your accomplishment… Read More

The AHC community has a remarkable network of strong families and friends that work hard to raise money every year for research and family support. The best way to support these AHC families is by encouraging family and… Read More

Registration is now open for our 3rd Annual Race to End AHC and it’s going to be our most exciting year yet! This year we’re connecting racers better than ever by using a digital race platform, My Virtual… Read More