Kudos to MMI Public Relations (the PR firm helping us with 1 in a Million) and Business Forward NC.  Today  I will be 1 of 25 people who will interact with Surgeon General Rebecca Benjamin in a roundtable discussion here in Raleigh  about improving quality of life & health for ALL Americans.  I’ll be able to raise some awareness about AHC and the impact the disease has on health, not just of the sufferer, but of the entire family of the sufferer.   Helping disabled Americans be included in activities, and giving them access to ways to exercise & improve their health is a priority for Dr. Benjamin, so this is a great opportunity.

While the discussion might not lead to immediate monies for AHC research, certainly the encounter will not hurt and it just might open new doors we don’t yet know about.   The moral of the story is “keep telling the AHC story (your child’s story) to as many people that you can.  You never know who might open a door for us as we journey towards the cure.

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