St. Joseph’s Children’s Hospital clinic wins federal innovation grant

TAMPA — Like many teenagers, Caroline West needed to have her wisdom teeth extracted. But Caroline, 17, has a rare genetic condition known as alternating hemiplegia of childhood that has left her with severe physical and mental disabilities.

Shrub Oak family seeks funds for cure for daughter’s rare disease

  Local news article from the Hodes family about Lisa. Great job spreading awareness about AHC and AHCF! Announces Support Of Rare Disease Day 2014, long time supporter and fund raiser for the Alternating Hemiplegia of Childhood Foundation, announced support of Rare Disease Day on February 28, 2014. Thanks to Bill Gerber co-founder for another great awareness article for Sean and AHC.

Hodes’ featured in news story for Rare disease day

Paul and Rene Hodes, of Shrub Oak, hope raising awareness of AHC will help find cure is the title of a news story by channel 12 news of Westchester county, NY. The Hodes’ and their daughter Lisa were… Read More

Family Hopes Fundraiser will bring awareness to their child’s disease

Read the full article here

AHCF receives donation of $169,000!

A very generous donor who wishes to remain anonymous has given AHCF $169,000 to accelerate ongoing AHC research!

Erpenbecks spread awareness for AHC with article about Austin

Check out this issue of NKY Live.  Turn to pg 22 and read about Austin Erpenbeck. Great job for AHC awareness Mollie and Allison!  

Brittany Deluke Interview about AHC

Brittany Deluke a beautiful 24 yo with AHC and her parents and sister were interviewed on Fox TV Orlando. They did a great job expressing what it’s like having AHC. Brittany’s Interview  

Rock the Reel News Article

Click here  for the Rock the Reel News Article written about the event in honor of Kiley Andrasco

The Wagner Family On Fox TV in Salt Lake City

Recently Dwayne & Chrystal Wagner along their son Hunter told the story of their struggles with AHC to Fox 13 in Salt Lake City.  See the Video here.  Kudos to the Wagners for doing this & for PR… Read More