Step Up to END AHC Launched!

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Our inaugural campaign has kicked off! Step Up to END AHC is a call to action for families to raise, not donate, $500 to fund ongoing and new research into AHC. Joining the effort is easy and personal…. Read More

Interruptions

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This weekend we had an engagement for our oldest daughter. It was a lovely affair with family, the bridal party and close friends. Of course, AHC reared its ugly head and Kathleen went into an episode an hour… Read More

Welcome to Holland

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We have so many new parents who are struggling with the diagnosis of AHC.  No matter how much we tell ourselves that we are happy to put a name to what our children are suffering from, it is the… Read More

Wine Women and Shoes was a success!

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We are pleased to announce that our event ‘Wine Women and Shoes benefiting the Alternating Hemiplegia of Childhood’ was a huge success. Because of the support and generosity of our sponsors, donors and guests, we raised over $80,000.00… Read More

Date Night

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My mother-in-law always preached the importance of time with your spouse and made sure that my husband Mark and I went out every couple of months.  It was hard to get everything in place, be sure that all… Read More

Caregivers

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When Kathleen was little, I didn’t give much thought to having a caregiver.  Family helped whenever we needed someone to watch Kathleen.  We were also fortunate to have neighborhood babysitter right across the street and as soon as… Read More

ABLE Act

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Often families look to the foundation for advice or the latest information that they can’t put their hands on. Last month, a parent asked the following questions: “I recently heard that in January the “ABLE” bill was passed… Read More

Welcome to our new and improved website!

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Through the hard work of volunteers within the foundation, our web presence has been updated to reflect a brighter, cleaner, and more streamlined identity.All of the great information previously hosted on our “blue site” has been transferred and… Read More

Siblings – Part 1

As parents, we spend a lot of time dealing with our AHC children.  As a result, our other children may feel that their own needs have a lower priority to that of their AHC sibling.  In 2012, we… Read More

Independence

I hope everyone enjoyed Independence Day.  Independence… a word we take for granted on so many levels.  As parents, our goal is to make our children as independent as possible – ALL of our children.  Of course, independence… Read More