Guidestar Silver Badge earned by Foundation

Featured-Blog GuidestarSilver

AHCF received the GuideStar Nonprofit Profile Silver level logo, a leading symbol of transparency and accountability provided by GuideStar, the world’s largest source of information on nonprofits. The logo demonstrates AHCF deep commitment to nonprofit transparency and accountability. We hope you will check… Read More

Coalition Letter for Advancing Targeted Therapies for Rare Diseases

Featured-Blog TargetedTherapies

As a member of NORD we are proud to have joined forces with 75 other rare disease organizations and signed the “Coalition Letter for Advancing Targeted Therapies for Rare Diseases Act” Click here to view PDF of the… Read More

AHCF Newsletter campaign – still time to enter!

AHCF’s Newsletter Campaign ends in a few days. Be sure to encourage your friends and family to sign up for the newsletter by November 15th to be eligible to win a Google Chromecast. Our winner will be announced… Read More

AHCF spreads awareness at CNS meeting

The Child Neurology Society’s annual meeting was held in October 23-25 in Columbus, Ohio.  This is the largest gathering of Child Neurologists in the world.  AHCF was an exhibitor and was represented by Mollie Erpenbeck, Josh Marszalek and… Read More

ATP1A3 Related Neurologic Disorders

New comprehensive article from Gene Reviews by 3 of the Doctors who participated in our workshop this summer. Look for more pertinent articles by the end of the year. Remember when there was no news about AHC? we’ve… Read More

AHCF funds next phase of Vanderbilt Grant

2014 Molecular Physiology and Pharmacology of ATP1A3 Mutations in AHC The Alternating Hemiplegia of Childhood Foundation is pleased to announce that we have partially funded phase three of a research grant awarded to Dr. Kevin Ess at Vanderbilt… Read More

October news to share!

Hello AHCF families & friends, The October newsletter is here to enjoy between all those Halloween treats! Newsletter 2014 Oct

Dr Silver conducts Grand Rounds on AHC

Dr Ken Silver, Vice Chair of the AHCF Medical Advisory Board will be conducting Grand Rounds today at the University of Chicago.  He will be teaching 100 physicians about AHC. Thank you Dr Silver! SilverGrandRounds

News, News, News!

AHCF families and friends: Please enjoy the September newsletter  <http://ahckids.org/wpcontent/uploads/2014/09/2014-SeptNewsletter.pdf>   Please note the addition of Dr Sasaki and Dr Rosewich to our Medical Advisory Board. It is with great excitement that we welcome their insight and guidance!

Loss of an AHC Angel

It is with heavy hearts that we share with you the loss of one of our young AHC angels, Ryleigh Hart, age 4.  Ryleigh passed away this past weekend.  We will share information about her service and other… Read More