Local news article from the Hodes family about Lisa. Great job spreading awareness about AHC and AHCF!
We are very pleased to announce that Gene Andrasco has been elected to assume the role of Vice President of AHCF. Gene has taken a very active roll with the Foundation since his daughter Kiley was diagnosed with… Read More
Did you know that with the new Health Care Law there are some significant tax implications for special needs families? Did you know if you come to the AHCF Family Meeting you can deduct your admission and transportation costs?
Please join me in welcoming our newest AHCF Board member Renee Hodes. Renee is mom to Marissa 24, David 16 and Lisa 13 who has AHC. Renee has worked tirelessly through many fundraising campaigns and frequently calls… Read More
“As organizations representing millions of American men, women and children suffering from rare diseases, we are writing to express our strong support for the Orphan Drug Tax Credit (ODTC). We know that Congress is developing tax reform proposals and… Read More
AccountingDepartment.com, long time supporter and fund raiser for the Alternating Hemiplegia of Childhood Foundation, announced support of Rare Disease Day on February 28, 2014. Thanks to Bill Gerber AccountingDepartment.com co-founder for another great awareness article for Sean and AHC.
Paul and Rene Hodes, of Shrub Oak, hope raising awareness of AHC will help find cure is the title of a news story by channel 12 news of Westchester county, NY. The Hodes’ and their daughter Lisa were… Read More
Congratulations to Dominique Poncelin and the French Association on the publication of their study regarding the burden of caregivers in AHC. Caregiver’s burden and psychosocial issues in alternating hemiplegia of childhood Original Research Article: European Journal of Paediatric Neurology,… Read More
The AHC Foundation is thrilled to announce the opening of the AHC Clinic at Monroe Carell Jr. Children’s Hospital at Vanderbilt. Under the Direction of Dr. Kevin Ess, Chief of the Division of Pediatric Neurology, the clinic will… Read More
Due to the advent of next-generation sequencing, the field of AHC genetics has been evolving very rapidly over the past two years. Over the last month, five very noteworthy articles were published. Great work is being done to… Read More