Please join me in celebrating the 20th anniversary of the foundation. Follow the journey from the first foundation, the International Alternating Hemiplegia of Childhood Foundation (IFAHC) to the Alternating Hemiplegia of Childhood Foundation (AHCF). We are truly an… Read More
For Your Information please read: Family Letter 2013 Feb 28
Together lets’ break the borders of Rare Diseases! http://youtu.be/n6HReXaUUSw
Brittany Deluke a beautiful 24 yo with AHC and her parents and sister were interviewed on Fox TV Orlando. They did a great job expressing what it’s like having AHC. Brittany’s Interview
February 28, 2013 is Rare Disease day! Help AHC be heard in the Rare Disease Community! Sharing experiences helps people understand what it is like to live with a rare disease. Go here for ideas and to share your story… Read More
Join us in celebrating International AHC Day! One year ago today, the ATP1A3 gene that is a cause of AHC was discovered. Each year, we will celebrate our past accomplishments and look foward to those goals set by… Read More
Dear AHC Families, The AHCF Board of Directors is pleased to announce that Lynn Egan, our current Vice President, will act as interim President, assuming the responsibilities of President of the Foundation.
Dear AHC Friends & Families, On behalf of the Alternating Hemiplegia of Childhood Foundation Board of Directors, we wish you and your family a very happy holiday.
The AHCF Board is pleased to announce that we have awarded the following grants to Vanderbilt University and the University of Utah:
Becky & Joe Sproul, along with their son Jake, recently told their story about how they deal with Jake having AHC to their local newspaper in the Pittsburgh area. Click here for the story. Kudos to the Sprouls… Read More