AHC Foundation is proud to introduce our two most recent additions to our Board of Directors! We are looking forward to the contributions these two will make and the enthusiasm they will add to our outstanding board. Katelyn… Read More

A primary focus of AHCF’s mission is to fund research to find treatments and a cure for AHC. Since the first grant award in 1995, AHCF has funded $3,168,892.00 in research thanks to the help and generosity of… Read More

“We are living our worst fear. Most people’s worst fear – that something terrible would happen to your child. That you would have to watch helplessly as they suffer. That their life would be hard and filled with… Read More

We know that life looks a little different right now and that a lot of you are experiencing new challenges in the face of COVID-19. If you think you can raise money to help END AHC, then please… Read More

Let everyone know that you are passionate about joining the Race to END AHC by purchasing race gear! Order now to get your gear in time for race day! https://ahckids.z2systems.com/np/clients/ahckids/giftstore.jspProceeds from race merchandise directly fund critical research and… Read More

“When my daughter, Violet, was diagnosed with AHC, I had no idea what that really meant for her. Everything I read about it was terrible and uncertain, but there were so many variables that were not yet realized… Read More

A Blessing in Disguise –AAV Project Update August 2020 The AAV project continues to move forward and we have both progress—and some unexpected developments to report. A Refresh – What is the AAV Project? The AAV Project originated… Read More

AHCF currently funds a grant through MGH/Harvard with Dr Kathryn Swoboda. This Natural History Study is critical for future clinical trials and developing treatments for AHC!EVERY AHC FAMILY is asked to join. http://ahckids.org/naturalhistory/

Our May Newsletter begins with a message from our President, describes a new tool for patients, introduces our latest edition to the board of directors, announces our bibliography update, and shares some of the latest published research in… Read More

The AHC Foundation has published an Emergency Room Protocol. The intent of this document is to educate doctors unfamiliar with AHC and with your child’s specific medical needs.Especially in this time of COVID-19 viral infections where your child… Read More