AHCF currently funds a grant through MGH/Harvard with Dr Kathryn Swoboda. This Natural History Study is critical for future clinical trials and developing treatments for AHC!EVERY AHC FAMILY is asked to join. http://ahckids.org/naturalhistory/

Our May Newsletter begins with a message from our President, describes a new tool for patients, introduces our latest edition to the board of directors, announces our bibliography update, and shares some of the latest published research in… Read More

The AHC Foundation has published an Emergency Room Protocol. The intent of this document is to educate doctors unfamiliar with AHC and with your child’s specific medical needs.Especially in this time of COVID-19 viral infections where your child… Read More

Cabin Fever got you down? Shopping is sure to help!Visit our online store and chase those blues away!Check out the new, modern design created by an AHC sibling. Long and short-sleeved t-shirts, hoodies, polos, and even hats are… Read More

We are disappointed to announce the rescheduling of our 2020 Family Meeting in Los Angeles. COVID-19 events have cascaded to our community. The health and safety of our community is paramount. We would not encourage travel to our… Read More

$100,000 matching grant announced, Quilt raffle is better than ever, New partners in the Poarch Band of Creek Indians introduced, Social Media fundraising explained, New research published again!, Mourning the passing of an AHC angel, Newsletter help needed,… Read More

The Raffle will be drawn February 15, 2020 at 7pm during theWarriors for Kathryn event in Connersville, Indiana. Ticket Information:Online Raffle Ticket Sales will close at 1pm Eastern Time on day of drawing.Tickets will be available at the… Read More

Season’s greetings from Josh Marszalek, AAV Gene Therapy Project update, Research published, and a strong assessment of our collaboration with other AHC groups in this month’s newsletter from the AHC Foundation. Read. Share. Advocate. PDF version here.

December 6, 2019 – Joint message from Cure AHC, AHC Foundation and Hope for Annabel: We are pleased to share our latest progress on the AAV gene therapy project. Keeping with our space travel analogy, we are excited… Read More

Research Grant awarded, Summer matching grant met, Dr. George summarizes 8th ATP1A3 Symposium, Gene therapy basics, Epilepsy and AHC research published, AHCF advisor publishes paper on ATP1A3, and Family Meeting 2020 information in our newsletter!  Please read, share,… Read More