March 5, 2019 – Joint message from Cure AHC, AHC Foundation and Hope for Annabel: To pick an analogy for this second AAV Project update, we would say that it is like preparing for space travel.  We have… Read More

Largest fundraising effort ever is gaining momentum, Indiana doubles down on AHC, Valentine Exchange happens, Rare Disease Day Coming, Research published, and AAV project explained in this month’s newsletter. Read. Share. Advocate. http://ahckids.org/wp-content/uploads/2019/02/Newsletter_201902_February.pdf

The AAV Project is in Phase One and fundraising continues, Research Projects were authorized by the board, Webinar hosted and will be published on our YouTUBE channel soon, The AHC Bibliography has been updated through December 2018, the… Read More

The Raffle will be drawn February 2nd, 2019 at 7pm during the Warriors for Kathryn event in Connersville, Indiana. Click here to order tickets! Ticket Information: Online Raffle Ticket Sales will close at 3pm Eastern Time on day of drawing…. Read More

Gene Therapy project is in fundraising phase and we need help, Dr. George wraps up the 7th Symposium of ATP1A3 in Disease held in October. Read. Share. Enjoy. http://ahckids.org/wp-content/uploads/2018/12/Newsletter_201812_December.pdf

The fundraiser to end all fundraiser has started, the 7th research symposium for ATP1A3 in Disease happened, and research continues in this edition of the AHCF newsletter. Read. Share. Advocate http://ahckids.org/wp-content/uploads/2018/12/Newsletter_201811_November.pdf

The AAV Gene Therapy Webinar has been posted to our site. In case you missed the broadcast this past Thursday, we have posted the webinar for your viewing pleasure. Please view it, and learn about the great potential… Read More

AHCF’s Year-End Campaign to Fund Gene Therapy Research Innovative AAV Project Aims to Treat Alternating Hemiplegia of Childhood The AHC Foundation is excited to announce the beginning of our year-end campaign called, Step Up 4 AHC. One focus… Read More

Message from Lynn, Silver co-authors research article, Research grant funded by AHCF, International research symposium coming to Chicago in October, AHC bibliography updated on website, AHCF has new fundraising platform, 13th annual Chicago Walk happened, and our LARGEST… Read More

New Jersey Meeting was a success! Sibling session at the meeting had an impact, collaboration in the AHC organization community is coming together, AHC yearbook by the AHC community is coming, Dr. Kearney does grand rounds, FDA approves… Read More