November 2016 Newsletter

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Our November newsletter is here! A thanksgiving message from Lynn Egan,  the Step Up to END AHC campaign has begun, Dine and Dance was a success, grant to support Timebombs doc awarded,  open fundraising webinar scheduled, and simple fundraising… Read More

Step Up to END AHC Launched!

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Our inaugural campaign has kicked off! Step Up to END AHC is a call to action for families to raise, not donate, $500 to fund ongoing and new research into AHC. Joining the effort is easy and personal…. Read More

Impact Statement 2016 Published

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We are proud to issue our inaugural impact statement. It is published in our website here.  Read, Share, Enjoy!

Schalick Fundraiser launched!

Thank you Meredith for hosting this fundraiser which helps support research for Emilia and all the kids! “My brave Emilia was diagnosed with AHC in 2014 but I noticed symptoms in the recovery room after her birth.  We… Read More

September 2016 Newsletter

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Our September newsletter is here! Report from the London ATP1A3 symposium, AHC gets global attention in September, AHCF forms new partnership, Chicago Walk was a success, and Dine & Dance is coming in November. AHCF and the AHC community is… Read More

August 2016 Newsletter

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Our August newsletter is here! Re-capping our successful Family Meeting in Indianapolis, Research funds were awarded, Founding AHC researchers were honored, Research is published, the Chicago Walk is coming, Fundraising is happening, but needs your help. Please read,… Read More

Mission Video

The foundation has created this video explaining our mission beyond the words we use in our Bylaws, Foundation descriptions, and any other written word.  The spoken word and images from this video bring the richness, and bravery of… Read More