The Raffle will be drawn February 15, 2020 at 7pm during theWarriors for Kathryn event in Connersville, Indiana. Ticket Information:Online Raffle Ticket Sales will close at 1pm Eastern Time on day of drawing.Tickets will be available at the… Read More
Season’s greetings from Josh Marszalek, AAV Gene Therapy Project update, Research published, and a strong assessment of our collaboration with other AHC groups in this month’s newsletter from the AHC Foundation. Read. Share. Advocate. PDF version here.
December 6, 2019 – Joint message from Cure AHC, AHC Foundation and Hope for Annabel: We are pleased to share our latest progress on the AAV gene therapy project. Keeping with our space travel analogy, we are excited… Read More
Research Grant awarded, Summer matching grant met, Dr. George summarizes 8th ATP1A3 Symposium, Gene therapy basics, Epilepsy and AHC research published, AHCF advisor publishes paper on ATP1A3, and Family Meeting 2020 information in our newsletter! Please read, share,… Read More
The AHC Foundation is pleased to announce the funding of important research at Northwestern and Vanderbilt Universities. A continuation of important work supported by the AHCF, Dr. George and Dr. Ess will lead their teams in collaboration toward… Read More
ROLL CREDITS! You did it again! Thank you to the AHC community for crushing the Summer Sequel 25k Matching Grant from the Wedum Family Foundation! You raised $41,174 to which 25k will be added. A total of $66,174… Read More
Our 14th Annual Chicago Walk is coming up in October! Click here for more information and registration!
AHCF President says hello, Fundraisers abound in August, Summer Blockbuster Matching grant continues, Japanese research on AHC hearts published, Gene Therapy basics explained, AHC bibliography updated all in this month’s edition of the AHCF newsletter. Read. Share. Advocate…. Read More
Golf Outing to Benefit Alternating Hemiplegia of Childhood Foundation Sponsored by Terry and Barbara Sharo for their granddaughter, Kiley Andrasco Kiley is afflicted with a rare neurological disorder called AHC (Alternating Hemiplegia of Childhood). It has affected her… Read More
AHCF elects new leadership, Lyn Egan says “thank you” but not goodbye, Carol Presunka steps down from the board, AAV Project update, AHCF Family meeting set for L.A., Dr. Anderman passes away, AHCF fundraisers announced, Another matching grant… Read More