AHCF elects new leadership, Lyn Egan says “thank you” but not goodbye, Carol Presunka steps down from the board, AAV Project update, AHCF Family meeting set for L.A., Dr. Anderman passes away, AHCF fundraisers announced, Another matching grant… Read More

The Blockbuster Summer Sequel is here! We have another opportunity to double our donations this summer! Thanks to the Wedum Family Foundation, we will have all donations from June 1 thru August 31 matched. Up to $25,000! These… Read More

WOW! YOU DID IT! A challenge was made, and the community met it… AGAIN! We are overwhelmed to announce that the AHC community raised $59,196 in response to an April matching grant challenge! All donations in April will… Read More

  Download and print this PDF to distribute in your neighborhood Click here to download PDF Create your own AHCF fundraising page here: https://ahckids.z2systems.com/np/clients/ahckids/createFundraiser.jsp?campaignId=6&teamId=null Learn more about the AAV Gene Therapy Project here

AAV Project update, Minnesota family crushes fundraising effort, Japanese researchers connects ATP1A3 and Epilepsy, New condition identified related to AHC, and news about International foundations join AAV Project are all in this month’s newsletter from the AHC Foundation…. Read More

March 5, 2019 – Joint message from Cure AHC, AHC Foundation and Hope for Annabel: To pick an analogy for this second AAV Project update, we would say that it is like preparing for space travel.  We have… Read More

Largest fundraising effort ever is gaining momentum, Indiana doubles down on AHC, Valentine Exchange happens, Rare Disease Day Coming, Research published, and AAV project explained in this month’s newsletter. Read. Share. Advocate. http://ahckids.org/wp-content/uploads/2019/02/Newsletter_201902_February.pdf

The AAV Project is in Phase One and fundraising continues, Research Projects were authorized by the board, Webinar hosted and will be published on our YouTUBE channel soon, The AHC Bibliography has been updated through December 2018, the… Read More

The Raffle will be drawn February 2nd, 2019 at 7pm during the Warriors for Kathryn event in Connersville, Indiana. Click here to order tickets! Ticket Information: Online Raffle Ticket Sales will close at 3pm Eastern Time on day of drawing…. Read More

Gene Therapy project is in fundraising phase and we need help, Dr. George wraps up the 7th Symposium of ATP1A3 in Disease held in October. Read. Share. Enjoy. http://ahckids.org/wp-content/uploads/2018/12/Newsletter_201812_December.pdf