ROLL CREDITS! You did it again! Thank you to the AHC community for crushing the Summer Sequel 25k Matching Grant from the Wedum Family Foundation! You raised $41,174 to which 25k will be added. A total of $66,174… Read More

Our 14th Annual Chicago Walk is coming up in October! Click here for more information and registration!

AHCF President says hello, Fundraisers abound in August, Summer Blockbuster Matching grant continues, Japanese research on AHC hearts published, Gene Therapy basics explained, AHC bibliography updated all in this month’s edition of the AHCF newsletter. Read. Share. Advocate…. Read More

Golf Outing to Benefit Alternating Hemiplegia of Childhood Foundation Sponsored by Terry and Barbara Sharo for their granddaughter, Kiley Andrasco Kiley is afflicted with a rare neurological disorder called AHC (Alternating Hemiplegia of Childhood). It has affected her… Read More

AHCF elects new leadership, Lyn Egan says “thank you” but not goodbye, Carol Presunka steps down from the board, AAV Project update, AHCF Family meeting set for L.A., Dr. Anderman passes away, AHCF fundraisers announced, Another matching grant… Read More

The Blockbuster Summer Sequel is here! We have another opportunity to double our donations this summer! Thanks to the Wedum Family Foundation, we will have all donations from June 1 thru August 31 matched. Up to $25,000! These… Read More

WOW! YOU DID IT! A challenge was made, and the community met it… AGAIN! We are overwhelmed to announce that the AHC community raised $59,196 in response to an April matching grant challenge! All donations in April will… Read More

  Download and print this PDF to distribute in your neighborhood Click here to download PDF Create your own AHCF fundraising page here: https://ahckids.z2systems.com/np/clients/ahckids/createFundraiser.jsp?campaignId=6&teamId=null Learn more about the AAV Gene Therapy Project here

AAV Project update, Minnesota family crushes fundraising effort, Japanese researchers connects ATP1A3 and Epilepsy, New condition identified related to AHC, and news about International foundations join AAV Project are all in this month’s newsletter from the AHC Foundation…. Read More

March 5, 2019 – Joint message from Cure AHC, AHC Foundation and Hope for Annabel: To pick an analogy for this second AAV Project update, we would say that it is like preparing for space travel.  We have… Read More