November 2016 Newsletter

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Our November newsletter is here! A thanksgiving message from Lynn Egan,  the Step Up to END AHC campaign has begun, Dine and Dance was a success, grant to support Timebombs doc awarded,  open fundraising webinar scheduled, and simple fundraising… Read More

Step Up to END AHC Launched!


Our inaugural campaign has kicked off! Step Up to END AHC is a call to action for families to raise, not donate, $500 to fund ongoing and new research into AHC. Joining the effort is easy and personal…. Read More

Impact Statement 2016 Published


We are proud to issue our inaugural impact statement. It is published in our website here.  Read, Share, Enjoy!

Schalick Fundraiser launched!

Thank you Meredith for hosting this fundraiser which helps support research for Emilia and all the kids! “My brave Emilia was diagnosed with AHC in 2014 but I noticed symptoms in the recovery room after her birth.  We… Read More

September 2016 Newsletter

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Our September newsletter is here! Report from the London ATP1A3 symposium, AHC gets global attention in September, AHCF forms new partnership, Chicago Walk was a success, and Dine & Dance is coming in November. AHCF and the AHC community is… Read More

August 2016 Newsletter

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Our August newsletter is here! Re-capping our successful Family Meeting in Indianapolis, Research funds were awarded, Founding AHC researchers were honored, Research is published, the Chicago Walk is coming, Fundraising is happening, but needs your help. Please read,… Read More

Mobile App for Family Meeting

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We have developed a mobile App for your phone. It has the information about the conference and agenda (by track or entire list), news, profiles etc.. and everyone can upload pictures and send us messages. This is the… Read More

Rooted in Families Quilt Raffle

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We are pleased to offer two quilts created by Kathryn’s grandmother for the benefit of the AHC community.  These handmade quilts have been lovingly machine-pieced and machine-quilted.  One quilt has hand-appliqued spruce branches and berries in opposite corners… Read More

First Time Attendees Coming

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First time attendees are coming, and they are excited to expand their resources through networking, doctors, and support. The Family Meeting in Indianapolis is shaping up to be one of our best yet! Our 11th meeting in 18… Read More

Family Meeting Agenda

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Please CLICK HERE for a PDF (printable) version of the Agenda. Check back for additions or changes! We are working hard to make this our best meeting yet.