March Newsletter

The year is off to a great start for the AHC community.  Our March newsletter catches much of what is going on… Major new Study published with AHCF help, a reminder that our Medical Board has been answering… Read More

February Newsletter

It is Rare Disease Day!  The AHCF has been busy working on behalf of all AHC kids. This month’s newsletter outlines some of our recent work, and a few highlights to our future as a community.  A message… Read More

In the News: Emilia interview

On February 15 the New Jersey Fox 29 station published an interview with Emilia Schalick and her family.  A great interview that will certainly result in greater awareness of our rare disease.  Thank you for putting yourselves out there for… Read More

Valentine Exchange is Back!

Valentine Exchange! Hi AHC families, It’s time to start thinking about our annual Valentine’s Day card exchange. For those new to the group, the children/adults with AHC send cards to each other. Some make or buy cards to… Read More

Spread the Love this Valentine’s Day

Spread the love! As you shop for Valentines, please use this link and do some good at the same time! smile.amazon.com/ch/38-3225425

AHCF Fundraising, Awareness and Research grants

In honor of our annual AHC Day, AHCF is excited to announce that we will be able to fund two research projects to get us one step closer to a treatment for AHC! Fundraising is an integral part of… Read More

AHC Day Kamin Foundation Donation

Happy International AHC Day! As promised in last week’s announcement, there is more exciting news to share as we kick off 2017. The Jake and Nina Kamin Foundation family of AHC sufferer Asher Cohen, has awarded the AHC… Read More

Step Up Campaign is a Success!

Happy New Year to our AHC community, near and far!  2017 is starting off on a high note with wonderful, engaged families, incredible doctors focused on cutting edge research to find a treatment, and of course, generous donors… Read More

December 2016 Newsletter

A holiday message from Lynn (our President), annual fundraising campaign has begun, families are making the news, AHC Consortium work is happening in Europe, and research papers are summarized in this month’s newsletter.  Read.Share.Enjoy

November 2016 Newsletter

Our November newsletter is here! A thanksgiving message from Lynn Egan,  the Step Up to END AHC campaign has begun, Dine and Dance was a success, grant to support Timebombs doc awarded,  open fundraising webinar scheduled, and simple fundraising… Read More