Golf Outing to Benefit Alternating Hemiplegia of Childhood FoundationSponsored by Terry and Barbara Sharofor their granddaughter, Kiley Andrasco Kiley is afflicted with a rare neurological disorder called AHC (Alternating Hemiplegia of Childhood). It has affected her since birth… Read More

Registration is open for the 2021 family meeting! Join us virtually as we Zoom to END AHC on June 26 and 27. Register and learn more here: http://ahckids.org/zoom2021/#endAHC#zoom#familymeeting2021

The AHC Foundation with Hope for Annabel and CureAHC are collaborating with RARE-X to build a data collection program for AHC families. Click here to learn more about this patient owned data hub that can connect all the… Read More

The 2021 Warriors for Kathryn Quilt Raffle is open! This year’s quilt is a twin of that presented to the Poarch Creek Indians in appreciation of their generous matching grant in 2020. Both quilts created by AHC grandparent… Read More

Rarity in our world is often a very good thing. All of the most valuable things in our world are so because they are rare. The less of most any one thing, the more desired it is, and… Read More

The AHC Foundation is delighted to announce a partnership with Dr. David Liu’s laboratory at the Broad Institute and Harvard University to investigate gene editing as a potential therapy for AHC. The work of Dr. Liu and his… Read More

The second collaborative webinar is set for January 16th 1pm eastern! “Medication: Do No Harm” will be a panel style discussion of medications applied to AHC. The moderated format of the presentation will present questions submitted by the… Read More

Giving this Tuesday makes an impact on AHC kids and families far beyond one day. Help us by Giving Beyond Tuesday. #AHCkids #AHSTRONG #ENDAHC

As the Thanksgiving holiday is ought to do, we find ourselves contemplating what we give thanks for this year. I am only in my second year at the helm of this foundation, and I find myself thankful for… Read More

On behalf of the Alternating Hemiplegia of Childhood Foundation (AHCF) we are pleased to announce an award of $173,419.00 to the Department of Pharmacology, Northwestern University, Feinberg School of Medicine for the project “Exploring Mechanisms and the Therapeutic… Read More