July Newsletter

The Board of Directors has had a strategic planning session, the Foundation has funded three projects, the next Webinar has been scheduled, the foundation developed a Family Grant program, published research is summarized, and the Medical Advisory Board answers… Read More

Father’s Day and Amazon Smile

Father’s Day is Sunday, June 18. Shop at smile.amazon.com/ch/38-3225425 and Amazon will donate to Alternating Hemiplegia of Childhood Foundation

May Newsletter

Memorial Day is this weekend, and we have lots for you to read! Five article published, Mouse Model making news, AHCF Medical Advisory Board publishes a paper, AHCF hosted a “Call to Action” webinar regarding the threatened NIH… Read More

Inaugural AHCF New England Walk

JOIN US! in New England this May 21st for the first annual walk to benefit AHC communities through the AHC Foundation. A beautiful 1.5 mile walk through Nevers Park in South Winsor Connecticut with Friends, Music, Raffles, Food Trucks… Read More

April Newsletter

Honoring Volunteers, Advocating to maintain NIH funding, AHC Families Call to Action!, AHCF Medical Advisory Board continues to answer your questions, an Opinion Statement article published by research team, fundraising through triathlon, 2018 ATP1A3 Symposium announcement, and the… Read More

March Newsletter

The year is off to a great start for the AHC community.  Our March newsletter catches much of what is going on… Major new Study published with AHCF help, a reminder that our Medical Board has been answering… Read More

February Newsletter

It is Rare Disease Day!  The AHCF has been busy working on behalf of all AHC kids. This month’s newsletter outlines some of our recent work, and a few highlights to our future as a community.  A message… Read More

In the News: Emilia interview

On February 15 the New Jersey Fox 29 station published an interview with Emilia Schalick and her family.  A great interview that will certainly result in greater awareness of our rare disease.  Thank you for putting yourselves out there for… Read More

Valentine Exchange is Back!

Valentine Exchange! Hi AHC families, It’s time to start thinking about our annual Valentine’s Day card exchange. For those new to the group, the children/adults with AHC send cards to each other. Some make or buy cards to… Read More

Spread the Love this Valentine’s Day

Spread the love! As you shop for Valentines, please use this link and do some good at the same time! smile.amazon.com/ch/38-3225425