Please enjoy the latest newsletter from AHCF August Newsletter 2014
As I reflect on the success of the family meeting, I am proud of how this meeting was truly amazing! I love reconnecting with families, meeting new families and am always humbled by your presence. The family… Read More
TAMPA — Like many teenagers, Caroline West needed to have her wisdom teeth extracted. But Caroline, 17, has a rare genetic condition known as alternating hemiplegia of childhood that has left her with severe physical and mental disabilities.
Welcome to our new Blog. Lynn Egan will be blogging about things that affect AHC families and would love to hear your comments and ideas! The more dialog the better!! Check the blog often and join the conversation!… Read More
One of my favorite things to do for the foundation is to meet with AHC families at the AHCF Family Meeting. It is an incredible opportunity to catch up with old friends and meet new ones, hear from… Read More
The Alternating Hemiplegia of Childhood Foundation (AHCF) is proud to sponsor the scientific workshop titled “Achieving Consensus on Definitions and Outcomes for Natural History Studies and Clinical Trials in ATP1A3 Related Disorders.” Co-chaired by Dr Kathryn Swoboda and… Read More
The Family Meeting is fast approaching and we wanted to update you on some of the plans and also provide you with some things to consider. Thank you to those who have already signed up and a reminder… Read More
Local news article from the Hodes family about Lisa. Great job spreading awareness about AHC and AHCF!
We are very pleased to announce that Gene Andrasco has been elected to assume the role of Vice President of AHCF. Gene has taken a very active roll with the Foundation since his daughter Kiley was diagnosed with… Read More