ACTION ALERT! Stand up for Rare Disease Patients TODAY Congress is currently debating the 21st Century Cures Initiative, legislation that could dramatically improve the drug development process for rare disease treatments. We are hopeful that HR 971, the… Read More
French clinical trial for triheptanoin oil, U.S. Dept. of Education resources discussed, and Researchers are getting the word out on AHC in our April newsletter. Read, Enjoy, Share.
Dr Sandra Reyna has accepted a position at Massachusetts General Hospital at Harvard University. She will be the Assistant in Neuroscience and a Clinical Research Operations Scientist at the Neurological Clinical Research Institute! Dr. Reyna received her MD… Read More
Dr Kevin Ess of Vanderbilt University conducted Grand Rounds on AHC last week. His presentation seen by over 100 Neurologists started with AHC history, how far they have come in such a small amount of time, what they… Read More
Check out the write up for a major Foundation fundraiser, Wine Women and Shoes, in April’s Issue of GENTRY MAGAZINE! #wws4ahcf
Significant research for AHC is published, AHC Physicians are on the move, The Foundation launched its new website, and the third installment of an article series from an AHC parent are a few of the items in our March newsletter…. Read More
The foundation celebrates Rare Disease Day (February 28), AHC research is making headlines, A NEW fund raising effort is in progress for Jun 6, 2015, and the second installment of an article series from an AHC parent are… Read More
We Are grateful for all our donors for funding the momentum to a cure.
Much to celebrate and learn in our first newsletter of 2015. Success in fundraising, Administration moves, and part one of an article series from an AHC parent are a few of the items the foundation would like to… Read More
Through the hard work of volunteers within the foundation, our web presence has been updated to reflect a brighter, cleaner, and more streamlined identity.All of the great information previously hosted on our “blue site” has been transferred and… Read More