TAMPA — Like many teenagers, Caroline West needed to have her wisdom teeth extracted. But Caroline, 17, has a rare genetic condition known as alternating hemiplegia of childhood that has left her with severe physical and mental disabilities.
Welcome to our new Blog. Lynn Egan will be blogging about things that affect AHC families and would love to hear your comments and ideas! The more dialog the better!! Check the blog often and join the conversation!… Read More
One of my favorite things to do for the foundation is to meet with AHC families at the AHCF Family Meeting. It is an incredible opportunity to catch up with old friends and meet new ones, hear from… Read More
The Alternating Hemiplegia of Childhood Foundation (AHCF) is proud to sponsor the scientific workshop titled “Achieving Consensus on Definitions and Outcomes for Natural History Studies and Clinical Trials in ATP1A3 Related Disorders.” Co-chaired by Dr Kathryn Swoboda and… Read More
The Family Meeting is fast approaching and we wanted to update you on some of the plans and also provide you with some things to consider. Thank you to those who have already signed up and a reminder… Read More
Local news article from the Hodes family about Lisa. Great job spreading awareness about AHC and AHCF!
We are very pleased to announce that Gene Andrasco has been elected to assume the role of Vice President of AHCF. Gene has taken a very active roll with the Foundation since his daughter Kiley was diagnosed with… Read More
Did you know that with the new Health Care Law there are some significant tax implications for special needs families? Did you know if you come to the AHCF Family Meeting you can deduct your admission and transportation costs?
Please join me in welcoming our newest AHCF Board member Renee Hodes. Renee is mom to Marissa 24, David 16 and Lisa 13 who has AHC. Renee has worked tirelessly through many fundraising campaigns and frequently calls… Read More