The Alternating Hemiplegia of Childhood Foundation (AHCF) is proud to sponsor the scientific workshop titled “Achieving Consensus on Definitions and Outcomes for Natural History Studies and Clinical Trials in ATP1A3 Related Disorders.” Co-chaired by Dr Kathryn Swoboda and… Read More
The Family Meeting is fast approaching and we wanted to update you on some of the plans and also provide you with some things to consider. Thank you to those who have already signed up and a reminder… Read More
Local news article from the Hodes family about Lisa. Great job spreading awareness about AHC and AHCF!
We are very pleased to announce that Gene Andrasco has been elected to assume the role of Vice President of AHCF. Gene has taken a very active roll with the Foundation since his daughter Kiley was diagnosed with… Read More
Did you know that with the new Health Care Law there are some significant tax implications for special needs families? Did you know if you come to the AHCF Family Meeting you can deduct your admission and transportation costs?
Please join me in welcoming our newest AHCF Board member Renee Hodes. Renee is mom to Marissa 24, David 16 and Lisa 13 who has AHC. Renee has worked tirelessly through many fundraising campaigns and frequently calls… Read More
AccountingDepartment.com, long time supporter and fund raiser for the Alternating Hemiplegia of Childhood Foundation, announced support of Rare Disease Day on February 28, 2014. Thanks to Bill Gerber AccountingDepartment.com co-founder for another great awareness article for Sean and AHC.
Paul and Rene Hodes, of Shrub Oak, hope raising awareness of AHC will help find cure is the title of a news story by channel 12 news of Westchester county, NY. The Hodes’ and their daughter Lisa were… Read More
Read the full article here http://bcene.ws/135uU7P