Posted on November 9, 2020
The AHCF has earned its 2020 Great Non-Profits badge! Thanks to the volunteers and families for helping us with your nominations! The GreatNonprofits Top-Rated Awards is the one and only people’s choice award where volunteers, donors, and people… Read More
Posted on November 1, 2020
Check out a new story of an old family! Our latest addition to the WHO IS AHC section of our site is Kiley Andrasco, a 19 year-old AHC patient and daughter. Thank you for sharing this story! http://ahckids.org/kileyandrasco/… Read More
Posted on October 4, 2020
We get a double helping of Birthday Wishes in the AHC community today! Happy birthday Violet! May your day be strong and happy.
Posted on October 4, 2020
Big Happy Birthday wishes going out to San Francisco are to Kathleen Egan! Hoping for a strong day for you and your family! What a great day to race!
Posted on September 27, 2020
AHC Foundation is proud to introduce our two most recent additions to our Board of Directors! We are looking forward to the contributions these two will make and the enthusiasm they will add to our outstanding board. Katelyn… Read More
Posted on September 9, 2020
“When my daughter, Violet, was diagnosed with AHC, I had no idea what that really meant for her. Everything I read about it was terrible and uncertain, but there were so many variables that were not yet realized… Read More
Posted on August 8, 2020
A Blessing in Disguise –AAV Project Update August 2020 The AAV project continues to move forward and we have both progress—and some unexpected developments to report. A Refresh – What is the AAV Project? The AAV Project originated… Read More
Posted on June 27, 2020
AHCF currently funds a grant through MGH/Harvard with Dr Kathryn Swoboda. This Natural History Study is critical for future clinical trials and developing treatments for AHC!EVERY AHC FAMILY is asked to join. http://ahckids.org/naturalhistory/
Posted on May 31, 2020
Our May Newsletter begins with a message from our President, describes a new tool for patients, introduces our latest edition to the board of directors, announces our bibliography update, and shares some of the latest published research in… Read More
Posted on May 11, 2020
The AHC Foundation has published an Emergency Room Protocol. The intent of this document is to educate doctors unfamiliar with AHC and with your child’s specific medical needs.Especially in this time of COVID-19 viral infections where your child… Read More
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