It is with great excitement that we announce registration for our 11th AHCF Family Meeting is now open! Our eleventh biennial meeting marks 20 years of gatherings to support the AHC community by educating families, facilitating networks, and… Read More
Year-End Fundraising continues, Mice Model research discussed, Charity Mania is back, new Director elected to the AHCF Board, and a Holiday Message from our President, Lynn Egan in this month’s AHCF Newsletter. Read. Share. Enjoy.
Let everyone you know that they can have a dramatic impact on pace at which AHC research is being conducted. Our goal is to raise $60,000 to accelerate Phase IV research already underway at Vanderbilt & Northwestern Universities. Simply go… Read More
Thank you. These two words have special meaning. Without you, our amazing donors, without our dedicated scientists and researchers, and all of our extraordinary families, the AHCF would not be the same foundation it is today. Together we… Read More
AHCF speaks with Medical Students, Giving Tuesday mission explained, AHCF achieves Silver GuideStar medal and Great Non-Profits badges, Research underway at Wake Forest, and a thanksgiving message from AHCF in this month’s newsletter. Read, Share, Enjoy.
AHCF received the GuideStar Nonprofit Profile Silver level logo, a leading symbol of transparency and accountability provided by GuideStar, the world’s largest source of information on nonprofits. The logo demonstrates AHCF deep commitment to nonprofit transparency and accountability. We hope you will check… Read More
We update our bibliography annually. It is a big task, and our own Vicky Platt (research lady) takes it on every year. The articles included in this bibliography were selected to help parents locate information on a variety… Read More
As a member of NORD we are proud to have joined forces with 75 other rare disease organizations and signed the “Coalition Letter for Advancing Targeted Therapies for Rare Diseases Act” Click here to view PDF of the… Read More
We are proud to issue our inaugural impact statement. It is published in our website here (PDF), and will be available in printed form. Read, Share, Enjoy!
AHCF President represents the foundation at 4th ATP1A3 Symposium, Research updates are abound, Medical Advisory Board explains heart article, 10th Chicago Walk a success, Research doctor offers his summary of the symposium, and Fundraising continues its momentum this fall…. Read More