We update our bibliography annually. It is a big task, and our own Vicky Platt (research lady) takes it on every year. The articles included in this bibliography were selected to help parents locate information on a variety… Read More
As a member of NORD we are proud to have joined forces with 75 other rare disease organizations and signed the “Coalition Letter for Advancing Targeted Therapies for Rare Diseases Act” Click here to view PDF of the… Read More
We are proud to issue our inaugural impact statement. It is published in our website here (PDF), and will be available in printed form. Read, Share, Enjoy!
AHCF President represents the foundation at 4th ATP1A3 Symposium, Research updates are abound, Medical Advisory Board explains heart article, 10th Chicago Walk a success, Research doctor offers his summary of the symposium, and Fundraising continues its momentum this fall…. Read More
OCTOBER 3rd and 4th! Excited for our 5th annual AHC (Alternating Hemiplegia of Childhood) fundraiser this weekend! “Fall in Love” with Hope for Connor & Kids PuMpKiNs & More is the place to be this Saturday and Sunday…. Read More
10th annual AHCF Chicago Walk a huge success! On September 20th, Gene and Kelly Andrasco and Andy and Vicky Platt hosted the 10th annual walk in Lake Zurich, Illinois to honor their daughters, Kiley (14) and Emma Rose… Read More
Our 10th Annual Chicago Walk is coming up in September! Click here for more information and registration!
We have an UBER Newsletter this August! AHC Students Start school, Fundraisers abound, Published research update, Part 5 of our Parent written series on AHC diagnosis, an introduction to our Foundation Coordinator, and a founding father of AHC… Read More
Major fundraiser completed with success, Family meeting announcement, Champion for Hope nomination received, June Golf Outing a huge success, and some thoughts on Sharing are all parts of our latest newsletter. Please Read, Enjoy, and Share!
The Foundation is very pleased to announce that the 2016 AHCF Family Meeting will be held July 13th thru 17th in Indianapolis, Indiana! The AHCF Family Meeting offers access to AHC clinicians, genetic counseling, presentations of current research, and… Read More