The Sharo family of south Chicago, Illinois will be hosting the 4th annual golf outing July 31st at beautiful Deer Creek Golf Course. The day includes 18 holes of golf and a buffet dinner for all participants. Registration for… Read More
The Hudson Valley Renegades Fundraiser is on again this year! This organization partners with the Hodes family in New York to raise funds for AHC research. Is the a better way to raise funds than a wholesome family… Read More
Congratulations and thank you to Dr Louis Viollet, Dr Kathryn Swoboda, Dr Matt Sweney, Sr Sandra Reyna, Tara Newcomb, the rest of the team at the University of Utah and all of the physicians who have contributed in… Read More
Help raise money for AHC research by joining the Golf Fore a Cure 2015 Golf Outing in Winchester, Illinois. Saturday June 13 at Plum Creek Golf Course. Click here for more information.
ACTION ALERT! Stand up for Rare Disease Patients TODAY Congress is currently debating the 21st Century Cures Initiative, legislation that could dramatically improve the drug development process for rare disease treatments. We are hopeful that HR 971, the… Read More
French clinical trial for triheptanoin oil, U.S. Dept. of Education resources discussed, and Researchers are getting the word out on AHC in our April newsletter. Read, Enjoy, Share.
Dr Sandra Reyna has accepted a position at Massachusetts General Hospital at Harvard University. She will be the Assistant in Neuroscience and a Clinical Research Operations Scientist at the Neurological Clinical Research Institute! Dr. Reyna received her MD… Read More
Dr Kevin Ess of Vanderbilt University conducted Grand Rounds on AHC last week. His presentation seen by over 100 Neurologists started with AHC history, how far they have come in such a small amount of time, what they… Read More
Check out the write up for a major Foundation fundraiser, Wine Women and Shoes, in April’s Issue of GENTRY MAGAZINE! #wws4ahcf
Significant research for AHC is published, AHC Physicians are on the move, The Foundation launched its new website, and the third installment of an article series from an AHC parent are a few of the items in our March newsletter…. Read More