Vanderbilt continues to make progress. Click here to read the latest update Vanderbilt Interim progress reportJan 2014
Read about the progress of the Vanderbilt research from the grant funded by AHCF….We made substantial progress toward completing the goals of Specific Aims 1 and 3 proposed last year. Some unforeseen obstacles hindered progress in Specific Aim… Read More
AHCF families and friends: Please enjoy the September newsletter <http://ahckids.org/wpcontent/uploads/2014/09/2014-SeptNewsletter.pdf> Please note the addition of Dr Sasaki and Dr Rosewich to our Medical Advisory Board. It is with great excitement that we welcome their insight and guidance!
It is with heavy hearts that we share with you the loss of one of our young AHC angels, Ryleigh Hart, age 4. Ryleigh passed away this past weekend. We will share information about her service and other… Read More
‘Thank you to Dr Al George for representing us at the 3rd ATP1A3 symposium in the Netherlands and sharing this report of the meeting. Dr GeorgeLunterenreport
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Please enjoy the latest newsletter from AHCF August Newsletter 2014
As I reflect on the success of the family meeting, I am proud of how this meeting was truly amazing! I love reconnecting with families, meeting new families and am always humbled by your presence. The family… Read More
TAMPA — Like many teenagers, Caroline West needed to have her wisdom teeth extracted. But Caroline, 17, has a rare genetic condition known as alternating hemiplegia of childhood that has left her with severe physical and mental disabilities.