July Newsletter

The Board of Directors has had a strategic planning session, the Foundation has funded three projects, the next Webinar has been scheduled, the foundation developed a Family Grant program, published research is summarized, and the Medical Advisory Board answers… Read More

May Newsletter

Memorial Day is this weekend, and we have lots for you to read! Five article published, Mouse Model making news, AHCF Medical Advisory Board publishes a paper, AHCF hosted a “Call to Action” webinar regarding the threatened NIH… Read More

April Newsletter

Honoring Volunteers, Advocating to maintain NIH funding, AHC Families Call to Action!, AHCF Medical Advisory Board continues to answer your questions, an Opinion Statement article published by research team, fundraising through triathlon, 2018 ATP1A3 Symposium announcement, and the… Read More

March Newsletter

The year is off to a great start for the AHC community.  Our March newsletter catches much of what is going on… Major new Study published with AHCF help, a reminder that our Medical Board has been answering… Read More

February Newsletter

It is Rare Disease Day!  The AHCF has been busy working on behalf of all AHC kids. This month’s newsletter outlines some of our recent work, and a few highlights to our future as a community.  A message… Read More

December 2016 Newsletter

A holiday message from Lynn (our President), annual fundraising campaign has begun, families are making the news, AHC Consortium work is happening in Europe, and research papers are summarized in this month’s newsletter.  Read.Share.Enjoy

November 2016 Newsletter

Our November newsletter is here! A thanksgiving message from Lynn Egan,  the Step Up to END AHC campaign has begun, Dine and Dance was a success, grant to support Timebombs doc awarded,  open fundraising webinar scheduled, and simple fundraising… Read More

September 2016 Newsletter

Our September newsletter is here! Report from the London ATP1A3 symposium, AHC gets global attention in September, AHCF forms new partnership, Chicago Walk was a success, and Dine & Dance is coming in November. AHCF and the AHC community is… Read More

August 2016 Newsletter

Our August newsletter is here! Re-capping our successful Family Meeting in Indianapolis, Research funds were awarded, Founding AHC researchers were honored, Research is published, the Chicago Walk is coming, Fundraising is happening, but needs your help. Please read,… Read More

May Newsletter

The foundation is celebrating the kids at the Indianapolis Family Meeting, Duke publishes research article, Family meeting benefits outlined, Fundraising efforts coming, and Info Exchange articles discuss savings and behavior in our May Newsletter.  Read. Share. Enjoy.