Rarity in our world is often a very good thing. All of the most valuable things in our world are so because they are rare. The less of most any one thing, the more desired it is, and… Read More

The AHC Foundation is delighted to announce a partnership with Dr. David Liu’s laboratory at the Broad Institute and Harvard University to investigate gene editing as a potential therapy for AHC. The work of Dr. Liu and his… Read More

Giving this Tuesday makes an impact on AHC kids and families far beyond one day. Help us by Giving Beyond Tuesday. #AHCkids #AHSTRONG #ENDAHC

As the Thanksgiving holiday is ought to do, we find ourselves contemplating what we give thanks for this year. I am only in my second year at the helm of this foundation, and I find myself thankful for… Read More

On behalf of the Alternating Hemiplegia of Childhood Foundation (AHCF) we are pleased to announce an award of $173,419.00 to the Department of Pharmacology, Northwestern University, Feinberg School of Medicine for the project “Exploring Mechanisms and the Therapeutic… Read More

The AHCF has earned its 2020 Great Non-Profits badge! Thanks to the volunteers and families for helping us with your nominations! The GreatNonprofits Top-Rated Awards is the one and only people’s choice award where volunteers, donors, and people… Read More

Check out a new story of an old family! Our latest addition to the WHO IS AHC section of our site is Kiley Andrasco, a 19 year-old AHC patient and daughter. Thank you for sharing this story! http://ahckids.org/kileyandrasco/… Read More

Our May Newsletter begins with a message from our President, describes a new tool for patients, introduces our latest edition to the board of directors, announces our bibliography update, and shares some of the latest published research in… Read More

$100,000 matching grant announced, Quilt raffle is better than ever, New partners in the Poarch Band of Creek Indians introduced, Social Media fundraising explained, New research published again!, Mourning the passing of an AHC angel, Newsletter help needed,… Read More

Season’s greetings from Josh Marszalek, AAV Gene Therapy Project update, Research published, and a strong assessment of our collaboration with other AHC groups in this month’s newsletter from the AHC Foundation. Read. Share. Advocate. PDF version here.