Alternating Hemiplegia of Childhood FoundationAlternating Hemiplegia of Childhood Foundation

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Research Update

Posted on February 18, 2022

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2021 saw advances in a number of projects sponsored by the AHC organizations.  Here is an update of where we are today in each of them: 1. The AAV Project: AAV-Mediated Gene Therapy   We are continuing to assess… Read More

 Category: Homepage Tabs, Research Updates      Tags:

Research Funded

Posted on November 22, 2020

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On behalf of the Alternating Hemiplegia of Childhood Foundation (AHCF) we are pleased to announce an award of $173,419.00 to the Department of Pharmacology, Northwestern University, Feinberg School of Medicine for the project “Exploring Mechanisms and the Therapeutic… Read More

 Category: Foundation Updates, Homepage Tabs, News, Newsletters, Research Updates      Tags:

AAV Project Update

Posted on August 8, 2020

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A Blessing in Disguise –AAV Project Update August 2020 The AAV project continues to move forward and we have both progress—and some unexpected developments to report. A Refresh – What is the AAV Project? The AAV Project originated… Read More

 Category: Current Grants, Homepage Tabs, News, Research Updates      Tags:

AAV Project Update

Posted on December 6, 2019

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December 6, 2019 – Joint message from Cure AHC, AHC Foundation and Hope for Annabel: We are pleased to share our latest progress on the AAV gene therapy project. Keeping with our space travel analogy, we are excited… Read More

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Research Grant Awarded

Posted on September 29, 2019

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The AHC Foundation is pleased to announce the funding of important research at Northwestern and Vanderbilt Universities. A continuation of important work supported by the AHCF, Dr. George and Dr. Ess will lead their teams in collaboration toward… Read More

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AAV Project Update

Posted on March 6, 2019

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March 5, 2019 – Joint message from Cure AHC, AHC Foundation and Hope for Annabel: To pick an analogy for this second AAV Project update, we would say that it is like preparing for space travel.  We have… Read More

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Genotype/Phenotype article from Swoboda and team

Posted on May 24, 2015

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Congratulations and thank you to Dr Louis Viollet, Dr Kathryn Swoboda, Dr Matt Sweney, Sr Sandra Reyna, Tara Newcomb, the rest of the team at the University of Utah and all of the physicians who have contributed in… Read More

 Category: News, Research Updates      Tags: article, genotype, phenotype, research, swoboda

Vanderbilt Progress report – July 2014

Posted on October 24, 2014

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July 2014 progress report from Vanderbilt – Click here for the full report Ess-George July 2014 Progress Report AHCF

 Category: News, Research Updates      Tags:

Vanderbilt interim Research report January/2014

Posted on October 24, 2014

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Vanderbilt continues to make progress. Click here to read the latest update Vanderbilt Interim progress reportJan 2014

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Vanderbilt Research Update 10/2013

Posted on October 24, 2014

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Read about the progress of the Vanderbilt research from the grant funded by AHCF….We made substantial progress toward completing the goals of Specific Aims 1 and 3 proposed last year. Some unforeseen obstacles hindered progress in Specific Aim… Read More

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