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  • PowerPoint Files from the 2011 Family Gathering

    You may have already seen the videos and pictures from this year’s Family Gathering. Now you can download the actual slides used in our presentations.

    Here are the downloads (in MS PowerPoint format):

    Dr. Aga Lewitt’s update on Xyrem clinical trials

    Dr. Matt Sweney’s genetic studies update

    Dr. Erin Heinzen’s genetics presentation

    Dr. Ken Silver’s history of AHC (part 1 of 2)

    Dr. Ken Silver’s history of AHC (part 2 of 2)

    Dr Ken Silver’s presentation on Flunarizine

    Dr. Mikati’s presentation on seizures

    Dominique Poncelin’s update on European AHC Associations

    Siggi Johannesson’s update on European AHC Associations

    Johannesson’s and Poncelin’s update on Rare Disease Communities

    Dr. Josh Magleby’s presentation on behavior analysis, intervention, and management

    Dr. Mikati’s presentation on data from Europe and Japan


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