Global Genes project for RARE and genetic diseases

 

AHCF is now a supporting partner in the Global Genes Foundation Alliance Program. 

The goal of this program is create a strong collective voice by working with organizations, such as AHCF, who are committed to making positive changes in our rare disease community in a variety of areas such as advocacy, awareness, legislation, and education. Learn more about the Global Genes mission.

The program focuses on being an active support resource for individuals, organizations, and the entire rare disease community. This includes webinars on such topics as drug development, fundraising, nonprofit business information, and others to ensure we are up-to-date with the latest on rare disease advocacy, education, legislation and research. This also includes other items such as tool kits, media opportunities and hands-on support and guidance from their advocacy team. Everyone can get involved!