She began speech, occupational and physical therapy immediately. Keira began a program at a school for disabled children when she was 2-1/2. She started hippotherapy (horseback riding as therapy) at 3. Keira continued to have daily episodes until she was about 3 years old. After she began taking the drugs Flunarizine and Tamazepam, episodes decreased significantly although they are still a prevalent part of her life; Interruptions in routine, too much excitement, and heat are some of her biggest triggers. Today, Keira is 8 years old. Every day she wakes up with a smile on her face. She has learned to walk albeit a bit unsteadily. She talks all the time and learns a new world almost every day. Keira loves school and learning about letters and books. She is always the person in her class to say hi and give hugs to her friends. Keira loves to watch movies and will narrate them to whoever is around. Despite the hardship of her disease, she always always tries her best. It still does make me sad to see her struggle to play with other kids her age, to see her lose her balance when she tries to follow them, but she has come such a long way and accomplished things I wasn’t sure she would. I am so excited to see what else she will do.
So instead of mourning my normal baby and the life she would never have, I put all my energy into making sure Keira had every resource available so that she could reach her full potential.