Connect With Us!
AHC’s Family Connections! So Many Ways to Keep Connected:
Yahoo Discussion Group: The AFHA hosts a bulletin board. Everyone can subscribe. Families post their questions, concerns and ideas regarding AHC and their children.
Rare Connect is a joint collaboration between EURORDIS and NORD (the US National Organization for Rare Disorders). Rare Connect is an online social network for patients and families to connect with each other, to offer support and to share vital experiences on aspects of living with a rare disease.
Global Genes Project is one of the leading rare and genetic disease patient advocacy organizations in the world. The non-profit organization promotes the needs of the rare and genetic disease community under a unifying symbol of hope – the Blue Denim Genes Ribbon™. What began as a grassroots movement in 2009 with a few rare disease parent advocates and foundations has grown to over 500 global organizations.