News & Press

Foundation Updates

AHCF Pepsi Grant Research Update

Dear Families,

The Board of the Alternating Hemiplegia of Childhood Foundation (The Foundation) would like to share with you an update about the research we funded through the Pepsi Refresh Grant.

After The Foundation won the Pepsi Refresh Challenge, we funded research which focused on genetic sequencing of AHC patient blood samples. Through this grant, researchers were tasked on identifying possible genetic mutations that were responsible for causing AHC. As this research continues to proceed through the many stages of scientific discovery, the cause(s) of AHC seems to be close at hand. (more…)

Press Releases

Press Release March 22, 2012

A Million Strong to Cure This Rare Disease – Alternating Hemiplegia of Childhood (AHC)

Smart Online – PRNewswire

Newsletters

Winter 2012 Newsletter

The winter newsletter features articles on the One in a Million campaign and the upcoming Scientific and Family Meetings. 2012 Winter Newsletter

AHCF In the News

Local Drive to Raise Funds for AHC Research

Courtney Kaler is asking the community for help in raising money for a rare disorder her sister Aleesha has.

Media Kits

Our Mission Statement

Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals.

Secondarily, we strive to promote proper diagnosis, educate health care professionals, the public and related organizations, encourage the worldwide exchange of information and advance the development of an international database of all AHC patients.