AHC

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Empowering Families
and Professionals

The AHCF provides opportunities for collaboration, the latest in AHC literature and research education, and resources to empower AHC families and healthcare professionals as they care for individuals with AHC.

Families

Our experienced support team can help guide your AHC journey.

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Professionals

Professional level resources found here to educate about AHC.

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What are you looking for?

Find helpful information on the various categories below.

Patient Care Overview

Caring for AHC with Care Plans, Treatments, and Therapies
Glossaries & Faqs

Become familiar with the correct symptom terminology
Resources & Research

Families, Caregivers, & Professionals find useful resources here
Get Involved

A few minutes is all it takes to make an impact!
Blog

Community updates in real time

How We’re Making a Difference

Donating to the AHC Foundation allows us to fund the foremost research to end AHC, providing hope to AHC families around the world.

Donate now to END AHCAHCF in numbers
Over 3 Million raised for global research
Provide $5,000 annually to support AHC families in need
Over 90 cents of every dollar goes to our mission
World's largest foundation dedicated to AHC

Recent News & Updates

22 January 2024
Valentine’s Exchange Coming

Hello AHC families! It’s time for the AHC Valentine’s Day card exchange. This started as a way to keep our children connected between family meetings (before social media). All...

Newsroom
15 January 2024
2023 ATP1A3 Symposium in Chicago Summarized

The12th Symposium will be held in Barcelona, Spain November 14-15, 2024.

Community Updates Newsroom Research News
9 October 2023
In Memory of Mason

In loving memory of a member of our AHC family, Mason Wayne Bailey. Gone much too soon. We will not forget you. We will continue to fight AHC in...

Newsroom
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Upcoming Events

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AHCF relies entirely on volunteers

Every hour donated has a lasting impact on the lives of those with AHC! There are many ways to show your support, find out how you can get involved today.

Become a Volunteer

Learn about our Research

AHCF is at the forefront of advancing cutting edge research to find a treatment and a cure for this one in a million disorder.

See How