AHCF In the News
Yorktown Girl Battles with Rare Childhood Illness
From bowling to baseball, from sitting in a classroom to learning how to text, Lisa Marie Hodes has the same experiences many 10-year-olds have growing up in 2011.
Those experiences, which may seem simple and rudimentary for most children, do not come as easily to Lisa, who suffers from alternating hemiplegia of childhood (AHC), a childhood illness that has affected one-in-one million births over the last few years.
North County News article (PDF format)
Kiley Smiles Through Rigors of Rare Disorder
Like many other families, the Andrascos of Lake Zurich enjoyed their Christmas holiday. Their 11-year-old son Ryan and nine-year-old daughter, Kiley enjoyed their time off from school, although Kiley likes school so much that she was happy to return after the New Year.
“I got an iPod for this year,” Kiley said. Considering how much she enjoys music, it’s a gift that she will undoubtedly enjoy. “I can sing with my new microphone, too.”
Read the Full Article at the Lake Zurich Patch
Rolesville boy, 3, helps land 250K Pepsi grant
A 3-year-old Rolesville boy has helped spur a national nonprofit organization to victory in an online grant competition worth $250,000.
Matthew Wuchich, 3, was diagnosed with alternating hemiplegia of childhood when he was 18 months old. He appears in a promotional video for the AHC Foundation, which just won November’s Pepsi Refresh competition.
Read the full article at the News Observer
Determined Family Seeks Cause, Cure for Child’s Disease
A Rolesville boy with a rare disease has a chance at something almost as unlikely.
Matthew Wuchich’s parents are willing to do almost anything to increase awareness and research funding for AHC, or alternating hemiplegia of childhood.
Family Desperate For Votes Seeks Grant To Fund Research For Young Child With Rare Disorder
A Rolesville, NC family is hoping to win the Pepsi Refresh Project that could help to find a cure for a rare neurological disorder for which there is no current cure. Matthew Wuchich, age 3, was diagnosed with Alternating Hemiplegia of Childhood or AHC when he was 18 months old. Winning the grant is important to the family and to others with the disease since rare diseases often are overlooked by more common ailments.
Read the full article at SFGate
Run for the money: Aunt is aiming for 1000 miles to help niece
When Gara Sliwka, originally from Riverview, learned that her niece, Delaney, was diagnosed with an incurable neurological disease, she wanted to help, but didn’t know how.
She found a way, and she’s been working on it every day since Jan. 1.
Read the full article at The News-Herald
Students teaming up to aid ailing kindergartner: Lake Travis View
Hearts of the Lakeway Elementary School community are going out for kindergartner Carter Wagner this week.
http://laketravisview.com/2010/02/11/students-teaming-up-to-aid-ailing-kindergartner/
Ian’s Story a Battle for a Cure
Four-year-old Ian Palmerino loves to climb—into boxes or over couches. His mom calls him Spiderman because when wants to get into something badly enough, he can move with the agility of a superhero on a mission. But as we all know, every superhero has an enemy. Ian battles not a person, but an illness known as AHC. (more…)
