Thanksgiving Newsletter from AHCF!
Please enjoy the news from November and have a wonderful Thanksgiving! 2014 November
We are thankful. Happy Thanksgiving to all AHC families.
AHCF Newsletter campaign – still time to enter!
AHCF’s Newsletter Campaign ends in a few days. Be sure to encourage your friends and family to sign up for the newsletter by November 15th to be eligible to win a Google Chromecast. Our winner will be announced in the November newsletter, so stay tuned.
AHCF spreads awareness at CNS meeting
The Child Neurology Society’s annual meeting was held in October 23-25 in Columbus, Ohio. This is the largest gathering of Child Neurologists in the world. AHCF was an exhibitor and was represented by Mollie Erpenbeck, Josh Marszalek and Cate Cohen from the AHCF board and Dr Kevin Ess from Vanderbilt. They connected with numerous neurologists and handed out information about AHC and AHCF. Here is their report Newsletter 2014 Oct:pg1
ATP1A3 Related Neurologic Disorders
New comprehensive article from Gene Reviews by 3 of the Doctors who participated in our workshop this summer. Look for more pertinent articles by the end of the year. Remember when there was no news about AHC? we’ve come a long way! Thank you Dr Sweadner, Dr Ozelius, Dr Brashear and Dr Swoboda! http://www.ncbi.nlm.nih.gov/books/NBK1115/
AHCF funds next phase of Vanderbilt Grant
2014 Molecular Physiology and Pharmacology of ATP1A3 Mutations in AHC
The Alternating Hemiplegia of Childhood Foundation is pleased to announce that we have partially funded phase three of a research grant awarded to Dr. Kevin Ess at Vanderbilt University and Dr. Alfred George, Jr. at Northwestern University in the amount of $140,807.00. (more…)
October news to share!
Hello AHCF families & friends,
The October newsletter is here to enjoy between all those Halloween treats! Newsletter 2014 Oct
Dr Silver conducts Grand Rounds on AHC
Dr Ken Silver, Vice Chair of the AHCF Medical Advisory Board will be conducting Grand Rounds today at the University of Chicago. He will be teaching 100 physicians about AHC. Thank you Dr Silver! SilverGrandRounds
News, News, News!
AHCF families and friends: Please enjoy the September newsletter <http://ahckids.org/wpcontent/uploads/2014/09/2014-SeptNewsletter.pdf> Please note the addition of Dr Sasaki and Dr Rosewich to our Medical Advisory Board. It is with great excitement that we welcome their insight and guidance!
Loss of an AHC Angel
It is with heavy hearts that we share with you the loss of one of our young AHC angels, Ryleigh Hart, age 4. Ryleigh passed away this past weekend. We will share information about her service and other details as it is made available. Please keep parents Becky and Austin Hart and their entire family in your prayers during this difficult and sad time. (posted with permission)