Foundation Updates

July Family Newsletter

 

FM 2014 Hands n BraceletsAs I reflect on the success of the family meeting, I am proud of how this meeting was truly amazing! I love reconnecting with families, meeting new families and am always humbled by your presence. The family meetings leave me feeling energized and always strengthen my commitment to the AHC Community. (more…)

AHCF is Blogging!

blog3Welcome to our new Blog. Lynn Egan will be blogging about things that affect AHC families and would love to  hear your comments and ideas! The more dialog the better!!  Check the blog often and join the conversation!     http://ahckids.org/welcome-to-ahc-365/

 

 

Family Update Newsletter

One of my favorite things to do for the foundation is to meet with AHC families at the AHCF Family Meeting. It is an incredible opportunity to catch up with old friends and meet new ones, hear from researchers, chat with doctors, and learn from everyone attending the meeting. Read more in our latest newsletter

Family Update:newsletter

AHCF Workshop Announced

The Alternating Hemiplegia of Childhood Foundation (AHCF) is proud to sponsor the scientific workshop titled “Achieving Consensus on Definitions and Outcomes for Natural History Studies and Clinical Trials in ATP1A3 Related Disorders.” Co-chaired by Dr Kathryn Swoboda and Dr Allison Brashear, the full day workshop will take place concurrent with the AHCF Family Meeting on June 27th in Minneapolis, MN. (more…)

Family Meeting Update

The Family Meeting is fast approaching and we wanted to update you on some of the plans and also provide you with some things to consider. Thank you to those who have already signed up and a reminder for everyone who is still planning on coming….. (more…)

AHCF Family Meeting

Early Bird Registration Graphic

Shrub Oak family seeks funds for cure for daughter’s rare disease

Lisa:arcade

 

Local news article from the Hodes family about Lisa. Great job spreading awareness about AHC and AHCF!

 

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Gene Andrasco named AHCF VP

geneWe are very pleased to announce that Gene Andrasco has been elected to assume the role of Vice President of AHCF. Gene has taken a very active roll with the Foundation since his daughter Kiley was diagnosed with AHC.   (more…)

Tax Strategies for parents with Special Needs Kids!

Did you know that with the new Health Care Law there are some significant tax implications for special needs families?
Did you know if you come to the AHCF Family Meeting you can deduct your admission and transportation costs?  (more…)

Renee Hodes Joins AHCF Board

renee and daughters

 

Please join me in welcoming our newest AHCF Board member Renee Hodes. Renee is mom to Marissa 24, David 16 and Lisa 13 who has AHC.

Renee has worked tirelessly through many fundraising campaigns and frequently calls the Foundation with useful ideas that will improve our service to the AHC families. She is currently on the Family Meeting committee. Always willing to share information and lend encouragement to any family she is 100% invested in finding a treatment and a cure for AHC while helping support the families along the way. You can reach Renee at hodesr@yahoo.com Welcome Renee!!

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