Foundation Updates
ATP1A3 Rome Symposium
Second Symposium on ATP1A3 in disease
Genotype/Phenotype Correlations, modelling and identification of potential targets for treatment
Catholic University School of Medicine
Rome, Italy
23 – 24 September 2013
Mark your Calendars! 2014 AHCF Family Meeting – Minneapolis Minnesota!
It is with great excitement that we announce the AHCF Family meeting for 2014!! We will be travelling to Minneapolis Minnesota and hosting the meeting at the Hilton, Minneapolis/St Paul Airport, Mall of America www.mspairport.hilton.com The meeting will take place June 26 – 28 with clinical appointments by Dr Swoboda’s team from the University of Utah taking place before the meeting June 24 – 26.
Thank you to Mary Kay Riley for finding this venue which will be perfect for our meeting! (more…)
Lynn Egan Elected AHCF President!
The Alternating Hemiplegia of Childhood Foundation Board of Directors is very excited to announce that Lynn Egan was unanimously elected president of the foundation. (more…)
New Research Article about AHC
Alternating Hemiplegia of Childhood-Related Neural and Behavioural Phenotypes in Na+,K+-ATPase α3 Missense Mutant Mice
Free, full text article on mouse model of AHC gene Read Here
New AHC Foundation Address
Hello AHC Families and Friends,
Please Note the Foundation Office has Moved. Our new mailing address is:
AHCF
2000 Town Center suite 1900
Southfield, MI 48075
Save the Date!
AHCF Family Meeting 2014 is Coming!! Save the dates from June 26 – 28, 2014. Location will be announced by the end of March! Hope to see you there!
Rare Disease Day!
Together we are 30 Million Strong! Help spread the word! Share the Rare Disease video http://www.youtube.com/watch?v=n6HReXaUUSw
or the letter from the President http://rarediseaseday.us/message-to-nord-from-president-obama/
Winter newsletter 2013
Our Winter Update is here! AHCF February Update2013
Erpenbecks spread awareness for AHC with article about Austin
Check out this issue of NKY Live. Turn to pg 22 and read about Austin Erpenbeck. Great job for AHC awareness Mollie and Allison!
AHCF 20th Anniversary!
Please join me in celebrating the 20th anniversary of the foundation. Follow the journey from the first foundation, the International Alternating Hemiplegia of Childhood Foundation (IFAHC) to the Alternating Hemiplegia of Childhood Foundation (AHCF). We are truly an international family!
Read the History of AHCF and learn how the foundation started as an idea at the kitchen table to who we have become today. It is truly amazing that we have dedicated, unselfish families all working for the same cause – a treatment and ultimately a cure for AHC. We are truly an ‘elite’ group who have bonded together for our children. Lynn Egan
