Foundation Updates
AHCF Pepsi Grant Research Update
Dear Families,
The Board of the Alternating Hemiplegia of Childhood Foundation (The Foundation) would like to share with you an update about the research we funded through the Pepsi Refresh Grant.
After The Foundation won the Pepsi Refresh Challenge, we funded research which focused on genetic sequencing of AHC patient blood samples. Through this grant, researchers were tasked on identifying possible genetic mutations that were responsible for causing AHC. As this research continues to proceed through the many stages of scientific discovery, the cause(s) of AHC seems to be close at hand. (more…)
2012 AHCF Family Meeting
Dear AHC Families and Friends,
The Alternating Hemiplegia of Childhood Foundation Family Meeting will be held on Friday, June 29th, Saturday, June 30th and Sunday, July 1st, 2012 in beautiful San Francisco, California. This year we are asking all families and friends to register so we can have an accurate count and enough materials for everyone. We will be having clinic, genetic counseling and behavior appointments starting on Wednesday 27th and Thursday June 28th.
The Family Meeting will kick off with an AHCF sponsored luncheon at noon on Friday June 29th with all of the registered Physicians and AHC families and friends invited. (more…)
AHC Families Please Join the AHCF Facebook Page
All the families that are on Facebook now please join us on the AHCF Facebook page @ https://www.facebook.com/AHCKids?v=page_getting_started (more…)
