News, News, News!
AHCF families and friends: Please enjoy the September newsletter <http://ahckids.org/wpcontent/uploads/2014/09/2014-SeptNewsletter.pdf> Please note the addition of Dr Sasaki and Dr Rosewich to our Medical Advisory Board. It is with great excitement that we welcome their insight and guidance!
Loss of an AHC Angel
It is with heavy hearts that we share with you the loss of one of our young AHC angels, Ryleigh Hart, age 4. Ryleigh passed away this past weekend. We will share information about her service and other details as it is made available. Please keep parents Becky and Austin Hart and their entire family in your prayers during this difficult and sad time. (posted with permission)
ATP1A3 Netherlands Symposium Update
Latest news from AHCF
July Family Newsletter
As I reflect on the success of the family meeting, I am proud of how this meeting was truly amazing! I love reconnecting with families, meeting new families and am always humbled by your presence. The family meetings leave me feeling energized and always strengthen my commitment to the AHC Community. (more…)
AHCF is Blogging!
Welcome to our new Blog. Lynn Egan will be blogging about things that affect AHC families and would love to hear your comments and ideas! The more dialog the better!! Check the blog often and join the conversation! http://ahckids.org/welcome-to-ahc-365/
Family Update Newsletter
One of my favorite things to do for the foundation is to meet with AHC families at the AHCF Family Meeting. It is an incredible opportunity to catch up with old friends and meet new ones, hear from researchers, chat with doctors, and learn from everyone attending the meeting. Read more in our latest newsletter
AHCF Workshop Announced
The Alternating Hemiplegia of Childhood Foundation (AHCF) is proud to sponsor the scientific workshop titled “Achieving Consensus on Definitions and Outcomes for Natural History Studies and Clinical Trials in ATP1A3 Related Disorders.” Co-chaired by Dr Kathryn Swoboda and Dr Allison Brashear, the full day workshop will take place concurrent with the AHCF Family Meeting on June 27th in Minneapolis, MN. (more…)
Family Meeting Update
The Family Meeting is fast approaching and we wanted to update you on some of the plans and also provide you with some things to consider. Thank you to those who have already signed up and a reminder for everyone who is still planning on coming….. (more…)