Foundation Updates

Since the beginning, the primary goal of The Alternating Hemiplegia of Childhood Foundation is to raise funds for research and to find a cure and treatment(s) for all children with AHC. Over the years, the Foundation has funded the following grants related to this goal. For the full text of the grants, please email sharon@ahckids.org

Grants awarded to Vanderbilt and University of Utah

The AHCF Board is pleased to announce that we have awarded the following grants to Vanderbilt University and the University of Utah: (more…)

2012 Clinical and Genetics Studies in AHC and Genotype/Phenotype Correlations and Online AHC database

$175,000.00 grant awarded to Dr Swoboda – Part I: Clinical and Genetics Studies in AHC and Genotype/Phenotype Correlations, Part II: Online AHC database: Natural history and Functional Outcomes. Principal Investigator, Dr Kathryn Swoboda; Key Personnel: Research Associate, Kelley Murphy; Project Manager, Dr. Sandra Reyna

 

2011 Grant to Dr. Reyna

$25,000.00, Grant awarded to Dr Reyna to provide certain consultation, supervisory and advisory services in connection with the clinical drug trials through 12/31/2011.

2010 Pepsi Grant

$250,000.00, Pepsi Grant, To Identify the gene or genes causative for Alternating Hemiplegia of Childhood (AHC) as the critical step in understanding pathogenesis, In collaboration with the Institute of Systems Biology and complete Genomics, Dr Kathryn Swoboda Primary Investigator.

2010 Chase Grant

$20,000.00, Chase Grant, Allocated to Dr Sandra Reyna to provide certain consultation, supervisory and advisory services in connection with the clinical drug trials sponsored by AHCF – $5000.00 additional monies provided by AHCF

7/1/2007 – 6/30/2010 Grant to Dr. Swoboda

Three year grant awarded to continue ongoing efforts to identify the genetic mechanisms involved in disease pathogenesis, development of a fellowship program designed to attract new and talented young physicians to AHC research and proposed pilot clinical trial. Dr Kathryn Swoboda, Primary Investigator
7/1/2009 – 6/30/2010 – $134,873.50
7/1/2008 – 6/30/2009 – $211,473.02
7/1/2007 – 6/30/2008 – $203,339.45

2006 Grant to Dr. Magleby

$3100.00, Cognitive and Behavior Research Study.
Dr. Josh Magleby Phd. Primary Investigator

2003 – 2006 Grant to Dr. Swoboda

$66,890.00 each year, for three years ($200,670.00 total), University of Utah, Neurogenics Laboratory, to identify the genetic cause of Alternating Hemiplegia of Childhood, Dr. Kathryn Swoboda, Primary Investigator.

1999 – 2002 Grant to Drs. Van Brederode and Rho

$37,485.00, Effects of Flunarizine on Neocortical GABAergic Glutamatergic function. Dr. Van Brederode and Dr. Rho, Primary Investigators.

1999 – 2000 Grant to Dr. Ptacek

$40,000.00, Research for Molecular understanding of AHC. Dr. Ptacek, Primary Investigator

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