ACTION ALERT! Stand up for Rare Disease Patients TODAY
Congress is currently debating the 21st Century Cures Initiative, legislation that could dramatically improve the drug development process for rare disease treatments. We are hopeful that HR 971, the OPEN ACT – Orphan Product Extensions Now Accelerating Cures and Treatments Act will be included in 21st Century Cures. We urgently need your help to call Congress and inform them about the importance of the OPEN ACT, which could potentially double the number of approved rare disease treatments.
Simply put in your address and the list of representatives comes up for you to write to.