At six months old, he was referred to a neuro-ophthalmologist in hopes of getting a complete diagnosis.
At six months old, he was referred to a neuro-ophthalmologist in hopes of getting a complete diagnosis. After examining Austin, the videotapes, and speaking with the parents, Austin’s doctor diagnosed him with Alternating Hemiplegia of Childhood (AHC). Austin’s attacks occur every two to three weeks and last an average of three to four days. The severities of the attacks vary greatly from a single limb paralysis to full body paralysis. His longest full body paralysis lasted a grueling 14 days. Feeding Austin during this time is complicated as his tongue is non-functional and choking becomes a huge concern. We get through each day minute by minute.Austin was prescribed Flunarizine, (a calcium channel blocker) which must be obtained through Canada as it is not FDA approved for US. He began taking this medication at 9 mo of age. This prescription appeared to have reduced the duration of the attacks down to three or four days (prior to medication the average attack was seven days) but has not affected the frequency.
Austin began walking when he was 3.5 years old. He is beginning to speak in phrases. He played his first baseball season over the summer! These are all major achievements that he has accomplished. Austin loves attending school and playing with his older sister and brother. He also loves to draw, eat ice cream, and spend time with his family and friends. Aside from everything Austin has been through, he remains to be the happiest, most loving little boy. His smile can light up a room. His giggles are contagious. He IS the love of our life!
He also loves to draw, eat ice cream, and spend time with his family and friends.