Alternating Hemiplegia of Childhood FoundationAlternating Hemiplegia of Childhood Foundation

Donate/

Menu

  • Home
  • About AHC
    • What is AHC
    • AHCF Can Help
    • Genetic Testing for AHC
    • Medication
    • What AHC Looks Like
    • Patient Care
    • Family Care
      • ABLE Act
    • Compounding Conditions
    • Glossary
  • Research
    • Research Projects
      • AAV Project
      • Natural History Database Project
    • Research Studies
    • Databases
    • AHC Bibliography
    • AHC in Charts
    • Grant Requests
  • The Foundation
    • Overview
    • Board of Directors
    • Medical Advisory Board
    • Policies and Info
      • Website Term & Conditions
      • Copyright Statement
      • Trademarks & Servicemarks
      • Privacy Policy
      • Conflict of Interest Policy
      • Financials
  • Fundraising
    • Contribute
    • Fundraising Overview
      • Media Resources
    • Where Funds are Directed
    • Hosting an Event
    • Fundraising Ideas
    • Fundraising Resources
  • Community
    • Engage
    • Webinar Series
    • Get Involved
      • Volunteer
      • Fundraise
      • Contribute
    • Who is AHC?
    • Family Meetings
      • New Jersey 2018
      • Indianapolis 2016
    • AHC Organizations
  • Resources
    • AHCF Can Help
    • Webinar Series
    • Fundraising Resources
    • Media Resources
    • Glossary
    • Helpful Links
    • Site Map
  • Contact us!

St. Joseph’s Children’s Hospital clinic wins federal innovation grant

Posted on July 29, 2014

Leave a Comment

TAMPA — Like many teenagers, Caroline West needed to have her wisdom teeth extracted. But Caroline, 17, has a rare genetic condition known as alternating hemiplegia of childhood that has left her with severe physical and mental disabilities.

 Category: AHCF In the News, News      Tags:

Shrub Oak family seeks funds for cure for daughter’s rare disease

Posted on April 2, 2014

Leave a Comment

  Local news article from the Hodes family about Lisa. Great job spreading awareness about AHC and AHCF!  

 Category: AHCF In the News, Foundation Updates, News      Tags:

AccountingDepartment.com Announces Support Of Rare Disease Day 2014

Posted on February 28, 2014

Leave a Comment

AccountingDepartment.com, long time supporter and fund raiser for the Alternating Hemiplegia of Childhood Foundation, announced support of Rare Disease Day on February 28, 2014. Thanks to Bill Gerber AccountingDepartment.com co-founder for another great awareness article for Sean and AHC.

 Category: AHCF In the News, Foundation Updates, News      Tags:

Hodes’ featured in news story for Rare disease day

Posted on February 28, 2014

Leave a Comment

Paul and Rene Hodes, of Shrub Oak, hope raising awareness of AHC will help find cure is the title of a news story by channel 12 news of Westchester county, NY. The Hodes’ and their daughter Lisa were… Read More

 Category: AHCF In the News, Foundation Updates, News      Tags:

Family Hopes Fundraiser will bring awareness to their child’s disease

Posted on July 11, 2013

Leave a Comment

Read the full article here http://bcene.ws/135uU7P

 Category: AHCF In the News, News      Tags:

AHCF receives donation of $169,000!

Posted on July 9, 2013

Leave a Comment

A very generous donor who wishes to remain anonymous has given AHCF $169,000 to accelerate ongoing AHC research!

 Category: AHCF In the News, Foundation Updates, News      Tags:

Erpenbecks spread awareness for AHC with article about Austin

Posted on February 22, 2013

Leave a Comment

Check out this issue of NKY Live.  Turn to pg 22 and read about Austin Erpenbeck. Great job for AHC awareness Mollie and Allison!  

 Category: AHCF In the News, Foundation Updates, News      Tags:

Brittany Deluke Interview about AHC

Posted on January 31, 2013

Leave a Comment

Brittany Deluke a beautiful 24 yo with AHC and her parents and sister were interviewed on Fox TV Orlando. They did a great job expressing what it’s like having AHC. Brittany’s Interview  

 Category: AHCF In the News, Foundation Updates, News      Tags:

Rock the Reel News Article

Posted on January 29, 2013

Leave a Comment

Click here  for the Rock the Reel News Article written about the event in honor of Kiley Andrasco

 Category: AHCF In the News, News      Tags:

The Wagner Family On Fox TV in Salt Lake City

Posted on November 8, 2012

Leave a Comment

Recently Dwayne & Chrystal Wagner along their son Hunter told the story of their struggles with AHC to Fox 13 in Salt Lake City.  See the Video here.  Kudos to the Wagners for doing this & for PR… Read More

 Category: AHCF In the News, News      Tags:

1 2 3 »

A donation now can change the future for these children and families, before it is too late.

Become a fundraiser with our convenient peer-to-peer platform.

Foundation Updates
  • Research Update
  • Sharo Golf Outing August 6, 2021
  • Family Meeting Registration Open
  • Rare-X Data Collection
  • 2021 Quilt Raffle Open
GreatNonprofits
Contact Us
Alternating Hemiplegia of Childhood Foundation 2000 Town Center Suite 1900 Southfield, MI 48075
(313) 663-7772
Say what? Translate here.
Newsletter Subscription
Subscribe to our Email Newsletter
Our Partners
We’re Doing All Right!
Alternating Hemiplegia of Childhood Foundation Inc Nonprofit Overview and Reviews on GreatNonprofits
Volunteer. Donate. Review.

Copyright © 2022 · All Rights Reserved · Alternating Hemiplegia of Childhood Foundation