Alternating Hemiplegia of Childhood FoundationAlternating Hemiplegia of Childhood Foundation

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Research Funded

Posted on November 22, 2020

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On behalf of the Alternating Hemiplegia of Childhood Foundation (AHCF) we are pleased to announce an award of $173,419.00 to the Department of Pharmacology, Northwestern University, Feinberg School of Medicine for the project “Exploring Mechanisms and the Therapeutic… Read More

 Category: Foundation Updates, Homepage Tabs, News, Newsletters, Research Updates      Tags:

Challenge Busted!

Posted on June 4, 2019

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WOW! YOU DID IT! A challenge was made, and the community met it… AGAIN! We are overwhelmed to announce that the AHC community raised $59,196 in response to an April matching grant challenge! All donations in April will… Read More

 Category: Foundation Updates, Fundraising Events, Homepage Tabs, News      Tags:

Impact Statement 2017 Published

Posted on September 29, 2017

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We are proud to issue our annual impact statement. It is published in our website here.  Read, Share, Enjoy!

 Category: Foundation Updates, News      Tags:

AHCF Fundraising, Awareness and Research grants

Posted on January 18, 2017

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In honor of our annual AHC Day, AHCF is excited to announce that we will be able to fund two research projects to get us one step closer to a treatment for AHC! Fundraising is an integral part of… Read More

 Category: Foundation Updates, Fundraising, News      Tags:

Guidestar Silver Badge earned by Foundation

Posted on November 11, 2015

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AHCF received the GuideStar Nonprofit Profile Silver level logo, a leading symbol of transparency and accountability provided by GuideStar, the world’s largest source of information on nonprofits. The logo demonstrates AHCF deep commitment to nonprofit transparency and accountability. We hope you will check… Read More

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Coalition Letter for Advancing Targeted Therapies for Rare Diseases

Posted on October 27, 2015

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As a member of NORD we are proud to have joined forces with 75 other rare disease organizations and signed the “Coalition Letter for Advancing Targeted Therapies for Rare Diseases Act” Click here to view PDF of the… Read More

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AHCF Newsletter campaign – still time to enter!

Posted on November 13, 2014

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AHCF’s Newsletter Campaign ends in a few days. Be sure to encourage your friends and family to sign up for the newsletter by November 15th to be eligible to win a Google Chromecast. Our winner will be announced… Read More

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AHCF spreads awareness at CNS meeting

Posted on November 10, 2014

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The Child Neurology Society’s annual meeting was held in October 23-25 in Columbus, Ohio.  This is the largest gathering of Child Neurologists in the world.  AHCF was an exhibitor and was represented by Mollie Erpenbeck, Josh Marszalek and… Read More

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ATP1A3 Related Neurologic Disorders

Posted on November 7, 2014

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New comprehensive article from Gene Reviews by 3 of the Doctors who participated in our workshop this summer. Look for more pertinent articles by the end of the year. Remember when there was no news about AHC? we’ve… Read More

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AHCF funds next phase of Vanderbilt Grant

Posted on November 5, 2014

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2014 Molecular Physiology and Pharmacology of ATP1A3 Mutations in AHC The Alternating Hemiplegia of Childhood Foundation is pleased to announce that we have partially funded phase three of a research grant awarded to Dr. Kevin Ess at Vanderbilt… Read More

 Category: Current Grants, Foundation Updates, News      Tags:

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