2021 saw advances in a number of projects sponsored by the AHC organizations.  Here is an update of where we are today in each of them: 1. The AAV Project: AAV-Mediated Gene Therapy   We are continuing to assess… Read More

The AHC Foundation with Hope for Annabel and CureAHC are collaborating with RARE-X to build a data collection program for AHC families. Click here to learn more about this patient owned data hub that can connect all the… Read More