Alternating Hemiplegia of Childhood FoundationAlternating Hemiplegia of Childhood Foundation

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Research Update

Posted on February 18, 2022

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2021 saw advances in a number of projects sponsored by the AHC organizations.  Here is an update of where we are today in each of them: 1. The AAV Project: AAV-Mediated Gene Therapy   We are continuing to assess… Read More

 Category: Homepage Slideshow, Homepage Tabs, Research Updates      Tags:

Rare-X Data Collection

Posted on May 29, 2021

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The AHC Foundation with Hope for Annabel and CureAHC are collaborating with RARE-X to build a data collection program for AHC families. Click here to learn more about this patient owned data hub that can connect all the… Read More

 Category: Homepage Slideshow, Homepage Tabs, News      Tags:

Rare will be the new king

Posted on February 23, 2021

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Rarity in our world is often a very good thing. All of the most valuable things in our world are so because they are rare. The less of most any one thing, the more desired it is, and… Read More

 Category: Homepage Tabs, News, Newsletters      Tags:

CRISPR Research Funded

Posted on January 19, 2021

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The AHC Foundation is delighted to announce a partnership with Dr. David Liu’s laboratory at the Broad Institute and Harvard University to investigate gene editing as a potential therapy for AHC. The work of Dr. Liu and his… Read More

 Category: Current Grants, Homepage Tabs, News, Newsletters      Tags:

Medications: Do No Harm

Posted on January 7, 2021

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The second collaborative webinar is set for January 16th 1pm eastern! “Medication: Do No Harm” will be a panel style discussion of medications applied to AHC. The moderated format of the presentation will present questions submitted by the… Read More

 Category: Homepage Tabs, News      Tags:

Research Funded

Posted on November 22, 2020

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On behalf of the Alternating Hemiplegia of Childhood Foundation (AHCF) we are pleased to announce an award of $173,419.00 to the Department of Pharmacology, Northwestern University, Feinberg School of Medicine for the project “Exploring Mechanisms and the Therapeutic… Read More

 Category: Foundation Updates, Homepage Tabs, News, Newsletters, Research Updates      Tags:

2020 Great Non Profits Badge

Posted on November 9, 2020

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The AHCF has earned its 2020 Great Non-Profits badge! Thanks to the volunteers and families for helping us with your nominations! The GreatNonprofits Top-Rated Awards is the one and only people’s choice award where volunteers, donors, and people… Read More

 Category: Homepage Tabs, News, Newsletters      Tags:

New Honorarium!

Posted on November 1, 2020

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Check out a new story of an old family! Our latest addition to the WHO IS AHC section of our site is Kiley Andrasco, a 19 year-old AHC patient and daughter. Thank you for sharing this story! http://ahckids.org/kileyandrasco/… Read More

 Category: Homepage Tabs, News, Newsletters      Tags:

Happy Birthday Violet!

Posted on October 4, 2020

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We get a double helping of Birthday Wishes in the AHC community today! Happy birthday Violet! May your day be strong and happy.

 Category: Family, Homepage Tabs, News      Tags:

Happy Birthday Kathleen!

Posted on October 4, 2020

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Big Happy Birthday wishes going out to San Francisco are to Kathleen Egan! Hoping for a strong day for you and your family! What a great day to race!

 Category: Family, Homepage Tabs, News, Race to END AHC      Tags:

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Foundation Updates
  • Research Update
  • Sharo Golf Outing August 6, 2021
  • Family Meeting Registration Open
  • Rare-X Data Collection
  • 2021 Quilt Raffle Open
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