Posted on February 18, 2022
2021 saw advances in a number of projects sponsored by the AHC organizations. Here is an update of where we are today in each of them: 1. The AAV Project: AAV-Mediated Gene Therapy We are continuing to assess… Read More
Category: Homepage Slideshow, Homepage Tabs, Research Updates Tags:
Posted on May 29, 2021
The AHC Foundation with Hope for Annabel and CureAHC are collaborating with RARE-X to build a data collection program for AHC families. Click here to learn more about this patient owned data hub that can connect all the… Read More
Category: Homepage Slideshow, Homepage Tabs, News Tags:
Posted on February 23, 2021
Rarity in our world is often a very good thing. All of the most valuable things in our world are so because they are rare. The less of most any one thing, the more desired it is, and… Read More
Category: Homepage Tabs, News, Newsletters Tags:
Posted on January 19, 2021
The AHC Foundation is delighted to announce a partnership with Dr. David Liu’s laboratory at the Broad Institute and Harvard University to investigate gene editing as a potential therapy for AHC. The work of Dr. Liu and his… Read More
Category: Current Grants, Homepage Tabs, News, Newsletters Tags:
Posted on January 7, 2021
The second collaborative webinar is set for January 16th 1pm eastern! “Medication: Do No Harm” will be a panel style discussion of medications applied to AHC. The moderated format of the presentation will present questions submitted by the… Read More
Category: Homepage Tabs, News Tags:
Posted on November 22, 2020
On behalf of the Alternating Hemiplegia of Childhood Foundation (AHCF) we are pleased to announce an award of $173,419.00 to the Department of Pharmacology, Northwestern University, Feinberg School of Medicine for the project “Exploring Mechanisms and the Therapeutic… Read More
Category: Foundation Updates, Homepage Tabs, News, Newsletters, Research Updates Tags:
Posted on November 9, 2020
The AHCF has earned its 2020 Great Non-Profits badge! Thanks to the volunteers and families for helping us with your nominations! The GreatNonprofits Top-Rated Awards is the one and only people’s choice award where volunteers, donors, and people… Read More
Category: Homepage Tabs, News, Newsletters Tags:
Posted on November 1, 2020
Check out a new story of an old family! Our latest addition to the WHO IS AHC section of our site is Kiley Andrasco, a 19 year-old AHC patient and daughter. Thank you for sharing this story! http://ahckids.org/kileyandrasco/… Read More
Category: Homepage Tabs, News, Newsletters Tags:
Posted on October 4, 2020
We get a double helping of Birthday Wishes in the AHC community today! Happy birthday Violet! May your day be strong and happy.
Category: Family, Homepage Tabs, News Tags:
Posted on October 4, 2020
Big Happy Birthday wishes going out to San Francisco are to Kathleen Egan! Hoping for a strong day for you and your family! What a great day to race!
Category: Family, Homepage Tabs, News, Race to END AHC Tags:
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