Posted on February 11, 2023
The time is finally here for Family Meeting 2023. REGISTRATION OPENS MONDAY! We are thrilled to see you in person June 23-25, 2023 at the Embassy Suites in sunny Los Angeles Glendale, California. Leading researchers and doctors in… Read More
Category: Homepage Slideshow, Homepage Tabs Tags:
Posted on August 14, 2022
There are 6,000+ rare diseases. AHC was first noted in the 1970s; described as an unusual disorder in eight children who demonstrated intermittent episodes of weakness, affecting first one side of the body, then the other, with onset… Read More
Category: Homepage Tabs, Race to END AHC Tags:
Posted on August 14, 2022
The Race to End AHC looks different this year, and so does our gear! Visit the store to check out this year’s new t-shirt look and stock up on some classics like bandanas, car magnets, and the fan… Read More
Category: Homepage Tabs, Race to END AHC Tags:
Posted on August 14, 2022
The last two years we’ve had incredible race day parties all over the world. We still want to celebrate again together this year, just at the finish line instead! Gather your family and friends to celebrate your accomplishment… Read More
Category: Homepage Tabs, Race to END AHC Tags:
Posted on August 14, 2022
The AHC community has a remarkable network of strong families and friends that work hard to raise money every year for research and family support. The best way to support these AHC families is by encouraging family and… Read More
Category: Homepage Tabs, Race to END AHC Tags:
Posted on August 14, 2022
Registration is now open for our 3rd Annual Race to End AHC and it’s going to be our most exciting year yet! This year we’re connecting racers better than ever by using a digital race platform, My Virtual… Read More
Category: Homepage Tabs, Race to END AHC Tags:
Posted on February 18, 2022
2021 saw advances in a number of projects sponsored by the AHC organizations. Here is an update of where we are today in each of them: 1. The AAV Project: AAV-Mediated Gene Therapy We are continuing to assess… Read More
Category: Homepage Tabs, Research Updates Tags:
Posted on May 29, 2021
The AHC Foundation with Hope for Annabel and CureAHC are collaborating with RARE-X to build a data collection program for AHC families. Click here to learn more about this patient owned data hub that can connect all the… Read More
Category: Homepage Slideshow, Homepage Tabs, News Tags:
Posted on February 23, 2021
Rarity in our world is often a very good thing. All of the most valuable things in our world are so because they are rare. The less of most any one thing, the more desired it is, and… Read More
Category: Homepage Tabs, News, Newsletters Tags:
Posted on January 19, 2021
The AHC Foundation is delighted to announce a partnership with Dr. David Liu’s laboratory at the Broad Institute and Harvard University to investigate gene editing as a potential therapy for AHC. The work of Dr. Liu and his… Read More
Category: Current Grants, Homepage Tabs, News, Newsletters Tags:
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