Research Grant awarded, Summer matching grant met, Dr. George summarizes 8th ATP1A3 Symposium, Gene therapy basics, Epilepsy and AHC research published, AHCF advisor publishes paper on ATP1A3, and Family Meeting 2020 information in our newsletter!  Please read, share,… Read More

AHCF President says hello, Fundraisers abound in August, Summer Blockbuster Matching grant continues, Japanese research on AHC hearts published, Gene Therapy basics explained, AHC bibliography updated all in this month’s edition of the AHCF newsletter. Read. Share. Advocate…. Read More

AHCF elects new leadership, Lyn Egan says “thank you” but not goodbye, Carol Presunka steps down from the board, AAV Project update, AHCF Family meeting set for L.A., Dr. Anderman passes away, AHCF fundraisers announced, Another matching grant… Read More

AAV Project update, Minnesota family crushes fundraising effort, Japanese researchers connects ATP1A3 and Epilepsy, New condition identified related to AHC, and news about International foundations join AAV Project are all in this month’s newsletter from the AHC Foundation…. Read More

Largest fundraising effort ever is gaining momentum, Indiana doubles down on AHC, Valentine Exchange happens, Rare Disease Day Coming, Research published, and AAV project explained in this month’s newsletter. Read. Share. Advocate. http://ahckids.org/wp-content/uploads/2019/02/Newsletter_201902_February.pdf

The AAV Project is in Phase One and fundraising continues, Research Projects were authorized by the board, Webinar hosted and will be published on our YouTUBE channel soon, The AHC Bibliography has been updated through December 2018, the… Read More

Gene Therapy project is in fundraising phase and we need help, Dr. George wraps up the 7th Symposium of ATP1A3 in Disease held in October. Read. Share. Enjoy. http://ahckids.org/wp-content/uploads/2018/12/Newsletter_201812_December.pdf

The fundraiser to end all fundraiser has started, the 7th research symposium for ATP1A3 in Disease happened, and research continues in this edition of the AHCF newsletter. Read. Share. Advocate http://ahckids.org/wp-content/uploads/2018/12/Newsletter_201811_November.pdf

Message from Lynn, Silver co-authors research article, Research grant funded by AHCF, International research symposium coming to Chicago in October, AHC bibliography updated on website, AHCF has new fundraising platform, 13th annual Chicago Walk happened, and our LARGEST… Read More

New Jersey Meeting was a success! Sibling session at the meeting had an impact, collaboration in the AHC organization community is coming together, AHC yearbook by the AHC community is coming, Dr. Kearney does grand rounds, FDA approves… Read More