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DTSTART;VALUE=DATE:20251102
DTEND;VALUE=DATE:20260101
DTSTAMP:20260420T231127
CREATED:20251102T155254Z
LAST-MODIFIED:20251203T161944Z
UID:8837-1762041600-1767225599@ahckids.org
SUMMARY:Season of Giving - Help Ignite the Start of  AHC Research Projects in 2026
DESCRIPTION:Our year-end campaign is here — a season of hope\, movement\, and possibility for every individual living with Alternating Hemiplegia of Childhood. \nYou Can Help Light the Path in Three ways: \n\nSend a letter to family members\, friends\, colleagues\, or school/church members – asking for help in lighting the path – then ask them to share with their families and friends. Here are three template letters to use:\n\nLong version – tell your families story\nMedium version – great for personal emails and social posts\nShort version – perfect for text messages and quick emails\n\n\nJoin the “Light the Path” social media Giving campaign and then please share with your network https://www.facebook.com/AHCKids\nDonate yourself to help keep the momentum and exciting progress going https://ahckids.app.neoncrm.com/forms/ahcf-donation-form   Or mail a check to AHCF\, 2000 Town Center\, Suite 1900\, Southfield\, Mi 48075\n\nDear Friend of the AHC Foundation\, \nAs 2025 draws to a close\, we reflect on the incredible progress made during our 30th anniversary year—and the many families who continue to face the daily challenges of Alternating Hemiplegia of Childhood (AHC). Every step forward in research brings renewed hope for better treatments\, improved quality of life\, and\, ultimately\, a cure. \nBut hope needs fuel. It needs people like you. \nThis holiday season\, we invite you to join us in a powerful movement to Light the Path for AHC Research in 2026. Your year-end gift will illuminate the road ahead for groundbreaking studies\, innovative collaborations\, and the accelerating search for answers that every AHC family deserves. Three of the projects needing funding in 2026 are: \nDuke Univ.\, Phase 3 Gene Therapy project for D801N & E815K mutations.\nLeiden Univ.\, 5-year joint international study on sleep and Flunarizine.\nNIH Project – Using an AHC mouse model\, establish the impact of the D801N variant on the brain and cell survival \nTogether\, we can turn scientific potential into real progress. Together\, we can bring light to those navigating the uncertainty of this rare disorder. \nWe are reaching out to ask for your support in raising funds for the AHC Foundation\, an organization dedicated to advancing research\, improving treatments\, and providing hope for families like ours. Every donation\, no matter the amount\, helps fund scientific studies\, medical care advancements\, and community resources that bring us closer to finding better therapies—and\, one day\, a cure. \nPlease make your tax-deductible contribution before December 31 to help us start 2026 with strength\, momentum\, and determination. \nFrom all of us at the AHC Foundation\, thank you for being the light that guides our mission forward. We wish you peace\, health\, and joy in the year ahead. \nWith deep gratitude\, \nVictoria Platt \nPresident \nAHC Foundation
URL:https://ahckids.org/event/season-of-giving-help-ignite-the-start-of-ahc-research-projects-in-2026/
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2025/12/LTP32-e1764776554398.jpg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20251104
DTEND;VALUE=DATE:20260101
DTSTAMP:20260420T231127
CREATED:20251104T210826Z
LAST-MODIFIED:20251202T155412Z
UID:8828-1762214400-1767225599@ahckids.org
SUMMARY:Light the Path for AHC Research in 2026!
DESCRIPTION:Dear Friend of the AHC Foundation\, \nAs 2025 draws to a close\, we reflect on the incredible progress made during our 30th anniversary year—and the many families who continue to face the daily challenges of Alternating Hemiplegia of Childhood (AHC). Every step forward in research brings renewed hope for better treatments\, improved quality of life\, and\, ultimately\, a cure. \nBut hope needs fuel. It needs people like you.   Donate Here \nThis holiday season\, we invite you to join us in a powerful movement to Light the Path for AHC Research in 2026. Your year-end gift will illuminate the road ahead for groundbreaking studies\, innovative collaborations\, and the accelerating search for answers that every AHC family deserves. Three of the projects needing funding in 2026 are: \n\nDuke Univ.\, Phase 3 Gene Therapy project for D801N & E815K mutations.\nLeiden Univ.\, 5-year joint international study on sleep and Flunarizine.\nNIH Project – Using an AHC mouse model\, establish the impact of the D801N variant on the brain and cell survival\n\nTogether\, we can turn scientific potential into real progress. Together\, we can bring light to those navigating the uncertainty of this rare disorder. \nWe are reaching out to ask for your support in raising funds for the AHC Foundation\, an organization dedicated to advancing research\, improving treatments\, and providing hope for families like ours. Every donation\, no matter the amount\, helps fund scientific studies\, medical care advancements\, and community resources that bring us closer to finding better therapies—and\, one day\, a cure. \nPlease make your tax-deductible contribution before December 31 to help us start 2026 with strength\, momentum\, and determination. Checks can be mailed to our above address\, or online donations can be made at www.ahckids.org. \n From all of us at the AHC Foundation\, thank you for being the light that guides our mission forward. We wish you peace\, health\, and joy in the year ahead. \nWith deep gratitude\, \nVictoria Platt \nPresident \nAHC Foundation \n  \n 
URL:https://ahckids.org/event/light-the-path-for-ahc-research-in-2026/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251106T080000
DTEND;TZID=America/New_York:20251221T170000
DTSTAMP:20260420T231127
CREATED:20251116T183832Z
LAST-MODIFIED:20251116T183832Z
UID:8798-1762416000-1766336400@ahckids.org
SUMMARY:Hands of Hope for AHC - Add Your Photo
DESCRIPTION:It starts with our hands — and our hearts. \n\n\nFor the first time\, The AHC Foundation\, Cure AHC\, and AHC Europe are joining together in one global movement — Hands of Hope — to show the world what hope looks like when we hold it together. \n\n\n\n Now\, it’s your turn:\n\n\nWhat hands uplift you and your family on your AHC journey?\n\n\nThe hands that comfort\, that create\, that heal\, that bring joy.\n\n\n\n Take a photo of those hands in action — siblings\, parents\, friends\, doctors\, teachers\, therapists\, researchers — anyone who makes a difference.\n\n\nThen\, click the link below to upload your photo\, share who they are\, what they do\, and why it matters.\n\n\nhttps://forms.gle/ECZE17YLmjomXmpH8\n\n\n\nEvery submission will be shared across our social media channels — together creating a global mosaic of love\, strength\, and hope.\n\n\nBuilt by our community\, for our community.\n\n\nTogether\, we hold the future. \n\n\n\n#HandsOfHope #TogetherWeHoldTheFuture #AHCCommunity
URL:https://ahckids.org/event/hands-of-hope-for-ahc-add-your-photo/
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2025/11/Hands-of-Hope.jpeg
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