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DTSTART;TZID=America/New_York:20260325T190000
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UID:9358-1774465200-1774472400@ahckids.org
SUMMARY:How Your AHC Data Drives Research and Improves Care - Webinar 3/25
DESCRIPTION:Join us for an upcoming 𝗔𝗛𝗖 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗪𝗲𝗯𝗶𝗻𝗮𝗿 featuring 𝗗𝗿. 𝗡𝘂𝘁𝗮𝗻 𝗦𝗵𝗮𝗿𝗺𝗮 𝗳𝗿𝗼𝗺 𝗛𝗮𝗿𝘃𝗮𝗿𝗱 𝗨𝗻𝗶𝘃𝗲𝗿𝘀𝗶𝘁𝘆 𝗮𝗻𝗱 𝗠𝗮𝘀𝘀𝗮𝗰𝗵𝘂𝘀𝗲𝘁𝘁𝘀 𝗚𝗲𝗻𝗲𝗿𝗮𝗹 𝗛𝗼𝘀𝗽𝗶𝘁𝗮𝗹. \n📅 March 25th\n⏰ 7:00 PM EDT\nRegister Here: 🔗 https://tinyurl.com/ypdh3wua \nDr. Sharma will introduce a 𝗻𝗲𝘄 𝘁𝘄𝗼-𝘆𝗲𝗮𝗿 𝗔𝗛𝗖 𝘀𝘁𝘂𝗱𝘆 designed to better understand how AHC evolves from childhood through adulthood.\nThis first-of-its-kind study will bring together 𝗽𝗲𝗱𝗶𝗮𝘁𝗿𝗶𝗰 𝗮𝗻𝗱 𝗮𝗱𝘂𝗹𝘁 𝗺𝗼𝘃𝗲𝗺𝗲𝗻𝘁 𝗱𝗶𝘀𝗼𝗿𝗱𝗲𝗿 𝘀𝗽𝗲𝗰𝗶𝗮𝗹𝗶𝘀𝘁𝘀 to study the entire AHC community.\nThe research aims to:\n• Understand how AHC changes over time\, including during puberty\n• Identify measurable indicators of disease severity\n• Improve ICU and emergency care protocols for AHC patients\nTo reduce the travel burden for families\, the study will offer 𝗺𝘂𝗹𝘁𝗶𝗽𝗹𝗲 𝗽𝗮𝗿𝘁𝗶𝗰𝗶𝗽𝗮𝘁𝗶𝗼𝗻 𝗼𝗽𝘁𝗶𝗼𝗻𝘀\, including:\n• In-person visits at family meetings\n• Regional appointments\n• Telehealth visits\n• Home collection kits\nCome learn about this exciting opportunity and 𝗵𝗮𝘃𝗲 𝘆𝗼𝘂𝗿 𝗾𝘂𝗲𝘀𝘁𝗶𝗼𝗻𝘀 𝗮𝗻𝘀𝘄𝗲𝗿𝗲𝗱 𝗱𝗶𝗿𝗲𝗰𝘁𝗹𝘆 𝗯𝘆 𝗗𝗿. 𝗦𝗵𝗮𝗿𝗺𝗮.\n📅 March 25th\n⏰ 7:00 PM EDT\n🔗 https://tinyurl.com/ypdh3wua
URL:https://ahckids.org/event/how-your-ahc-data-drives-research-and-improves-care-webinar-3-25/
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2026/03/Sharma-Webinar-e1773326801200.jpg
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