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DTSTART;TZID=America/New_York:20260501T080000
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UID:9334-1777622400-1777654800@ahckids.org
SUMMARY:RARE Advocate Development (RAD) Brain Workshop
DESCRIPTION:We’re excited to share that the AHC Foundation has been invited to attend the RAREAdvocate Development (RAD) Brain Workshop this May in Boston! \n\n\n\nThis three-day intensive\, hosted by Global Genes\, the Rare Epilepsy Network (REN)\, and Mahzi Therapeutics\, brings together rare disease advocates who are actively accelerating research in their neurological conditions.\n\n\n\nFrom drug development and clinical trial design to regulatory strategy\, manufacturing\, and even drug repurposing\, this workshop is focused on building the knowledge and confidence needed to move therapies forward.\n\n\n\nWe’re honored to represent our community at this collaborative meeting at Alexion\, AstraZeneca Rare Disease\, and look forward to sharing key insights when we return.\n\n\n\nLearn more about the RAD Brain Workshop: https://globalgenes.org/rare-advocate-development-rad…/
URL:https://ahckids.org/event/rare-advocate-development-rad-brain-workshop/
CATEGORIES:Upcoming Events
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2026/03/foundation-focus-e1772532881254.jpg
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DTSTART;TZID=America/New_York:20260513T130000
DTEND;TZID=America/New_York:20260513T143000
DTSTAMP:20260506T195851Z
CREATED:20260505T224530Z
LAST-MODIFIED:20260506T195851Z
UID:9477-1778677200-1778682600@ahckids.org
SUMMARY:AHCF Family Circle – You’re Invited – 5/13/26
DESCRIPTION:Join us for our next AHCF Family Circle on Wednesday\, May 13th at 10am PST/ 12pm CST/ 1pm EST. \nThis is a support group for parents of individuals with AHC. Share your challenges and joys in this informal setting. Connect with others on this journey! \nIf you have questions\, please email Heather Gates at Heather@ahckids.org. We look forward to seeing you. \nJoin Zoom Meeting: https://us02web.zoom.us/j/85227963024 \nNeed a Reminder? \nSign up for text message reminders for AHC Family Circle at: https://www.remind.com/join/familyahc
URL:https://ahckids.org/event/ahcf-family-circle-youre-invited-5-13-26-2/
CATEGORIES:Upcoming Events
ATTACH;FMTTYPE=image/png:https://ahckids.org/wp-content/uploads/2025/10/AHC-Family-Circle-6-e1778021495433.png
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DTSTART;TZID=America/New_York:20260514T130000
DTEND;TZID=America/New_York:20260514T140000
DTSTAMP:20260506T195527Z
CREATED:20260506T195527Z
LAST-MODIFIED:20260506T195527Z
UID:9489-1778763600-1778767200@ahckids.org
SUMMARY:2026 Parent University - Vacations and Respite Ideas for the Whole Family
DESCRIPTION:In this exciting session about respite\, we will cover: \nHave you ever thought it is just not possible to have a vacation? Or maybe just some respite?\nHow does that fit into your life?\nWhere can you find resources that match the needs of your family?\nClick Here To Register
URL:https://ahckids.org/event/2026-parent-university-vacations-and-respite-ideas-for-the-whole-family/
CATEGORIES:Upcoming Events,Webinar
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2026/02/Parent-University-e1770137631214.jpg
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