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DTSTART;TZID=America/New_York:20260416T120000
DTEND;TZID=America/New_York:20260416T130000
DTSTAMP:20260419T005156
CREATED:20260401T183648Z
LAST-MODIFIED:20260319T184336Z
UID:9376-1776340800-1776344400@ahckids.org
SUMMARY:Parent University – Let’s Get Clear Together On Government Benefits
DESCRIPTION:In this in-depth session about government benefits\, we will cover: \n\nCan you ever know everything about the benefits available to you and your family?\nHow do you know if you have applied for everything possible? We’ll be talking about SSI\, SSDI\, DAC\, Medicare\, Medicaid\, SNAP\, and more.\n\n\nWhen:\nApril 16\, 2026    \n12:00 pm – 1:00 pm\nClick Here to Register
URL:https://ahckids.org/event/parent-university-lets-get-clear-together-on-government-benefits/
CATEGORIES:Upcoming Events
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2026/02/Parent-University-e1770137631214.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260311T130000
DTEND;TZID=America/New_York:20260311T140000
DTSTAMP:20260419T005156
CREATED:20260401T040011Z
LAST-MODIFIED:20260319T185225Z
UID:9057-1773234000-1773237600@ahckids.org
SUMMARY:AHCF Family Circle - You're Invited - 3/11/26
DESCRIPTION:Join us for our next AHCF Family Circle on Wednesday\, March 11th at 10am PST/ 12pm CST/ 1pm EST. \nThis is a support group for parents of individuals with AHC. Share your challenges and joys in this informal setting. Connect with others on this journey! \nIf you have questions\, please email Heather Gates at Heather@ahckids.org. We look forward to seeing you. \nJoin Zoom Meeting: https://us02web.zoom.us/j/85227963024 \nNeed a Reminder? \nSign up for text message reminders for AHC Family Circle at: https://www.remind.com/join/familyahc
URL:https://ahckids.org/event/ahcf-family-circle-youre-invited-21126-copy/
CATEGORIES:Upcoming Events
ATTACH;FMTTYPE=image/png:https://ahckids.org/wp-content/uploads/2025/10/AHC-Family-Circle-6.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260212T130000
DTEND;TZID=America/New_York:20260212T140000
DTSTAMP:20260419T005156
CREATED:20260203T195605Z
LAST-MODIFIED:20260203T195605Z
UID:9110-1770901200-1770904800@ahckids.org
SUMMARY:Parent University - Estate Planning
DESCRIPTION:All about estate planning 📄\nJoin Protected Tomorrows’ Parent University Class 2 for an informational session breaking down the different components of estate planning. In this class\, we will discuss:\n➡️ What are the components\n➡️ How to find the right attorney\n➡️ What needs to be updated and when\n📅 February 12\, 2026\n⏰ 12 – 1pm CDT\n💻 Zoom Webinar\n🔗Register TODAY: https://protectedtomorrows.com/…/2026-parent…/\nEven if you cannot attend the webinar\, register to receive an email with a link to watch the recording in the following week.
URL:https://ahckids.org/event/parent-university-estate-planning/
CATEGORIES:Upcoming Events,Webinar
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2026/02/Parent-University-e1770137631214.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260202T120000
DTEND;TZID=America/New_York:20260223T000000
DTSTAMP:20260419T005156
CREATED:20260202T151328Z
LAST-MODIFIED:20260202T153054Z
UID:9060-1770033600-1771804800@ahckids.org
SUMMARY:AHCF Apparel Pop-Up Store is Open!
DESCRIPTION:You asked—and we’re excited to say it’s back 💙 \nOur apparel store is officially OPEN as a limited-time pop-up\, launched to honor the meaningful days between International AHC Day and Rare Disease Day. \nThis collection is more than apparel. It’s about visibility\, connection\, and proudly supporting the AHC community. Many of these designs are fan favorites\, brought back by popular demand\, and available now through February 23. \nWhether you’re wearing your support\, sparking conversations\, or standing with rare families everywhere—every purchase helps make an impact. \n🛍️ Shop the pop-up before it closes on February 23 \n💙 Wear your support for rare \n✨ Celebrate awareness\, together \n\n\n\nShop here:\n\n\n\nhttps://ahcf2026.itemorder.com/shop/home/
URL:https://ahckids.org/event/ahcf-apparel-pop-up-store-is-open/
CATEGORIES:Upcoming Events
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2026/02/Monday_Apparel-Store-Launch-Graphic-11-e1770019838892.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260114T130000
DTEND;TZID=America/New_York:20260114T140000
DTSTAMP:20260419T005156
CREATED:20260105T204737Z
LAST-MODIFIED:20260105T204849Z
UID:8887-1768395600-1768399200@ahckids.org
SUMMARY:AHCF Family Circle - You're Invited - 1/14/26
DESCRIPTION:Join us for our next AHCF Family Circle on Wednesday\, January  14th at 10am PST/ 12pm CST/ 1pm EST. \nThis is a support group for parents of individuals with AHC. Share your challenges and joys in this informal setting. Connect with others on this journey! \nIf you have questions\, please email Heather Gates at Heather@ahckids.org. We look forward to seeing you. \nJoin Zoom Meeting: https://us02web.zoom.us/j/85227963024 \nNeed a Reminder? \nSign up for text message reminders for AHC Family Circle at: https://www.remind.com/join/ahcfamily
URL:https://ahckids.org/event/ahcf-family-circle-youre-invited-1-14-26/
CATEGORIES:Upcoming Events
ATTACH;FMTTYPE=image/png:https://ahckids.org/wp-content/uploads/2025/10/AHC-Family-Circle-6.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251210T130000
DTEND;TZID=America/New_York:20251210T140000
DTSTAMP:20260419T005156
CREATED:20251118T180217Z
LAST-MODIFIED:20251118T180217Z
UID:8820-1765371600-1765375200@ahckids.org
SUMMARY:AHCF Family Circle - You're Invited!
DESCRIPTION:Join us for our next AHCF Family Circle on Wednesday\, December 10th at 10am PST/ 12pm CST/ 1pm EST. \nThis is a support group for parents of individuals with AHC. Share your challenges and joys in this informal setting. Connect with others on this journey! \nIf you have questions\, please email Heather Gates at Heather@ahckids.org. We look forward to seeing you. \nJoin Zoom Meeting: https://us02web.zoom.us/j/85227963024 \nNeed a Reminder? \nSign up for text message reminders for AHC Family Circle at: https://www.remind.com/join/ahcfamily
URL:https://ahckids.org/event/ahcf-family-circle-youre-invited/
CATEGORIES:Upcoming Events
ATTACH;FMTTYPE=image/png:https://ahckids.org/wp-content/uploads/2025/10/AHC-Family-Circle-6.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251119T130000
DTEND;TZID=America/New_York:20251119T140000
DTSTAMP:20260419T005156
CREATED:20251104T210429Z
LAST-MODIFIED:20251110T155245Z
UID:8738-1763557200-1763560800@ahckids.org
SUMMARY:“AHC and Epilepsy\, Clarity and Confusion”
DESCRIPTION:💜 Join us for a live webinar Wednesday the 19th @ 1:pm EST. Dr. Kevin Ess\, a leading neurologist in Epilepsy and Alternating Hemiplegia of Childhood (AHC) will share insights from the front lines of research and care — what’s next for families and the path to better treatments\, then answer your questions! \nDr. Kevin C. Ess’s research integrates molecular neuroscience\, human stem cell modeling\, and clinical neurogenetics to elucidate mechanisms underlying developmental and epileptic encephalopathies\, with a major focus on Alternating Hemiplegia of Childhood (AHC)\, ATP1A3-related disorders\, and tuberous sclerosis complex (TSC). His laboratory has studied how pathogenic ATP1A3 mutations alter neuronal excitability using patient-derived iPSC models\, contributing pivotal evidence of impaired Na⁺/K⁺-ATPase function and developing translational platforms for therapeutic discovery. \nClinically\, he is a pediatric epileptologist who founded and directs comprehensive rare disease programs\, including the AHC and TSC Clinics at Vanderbilt and Colorado Children’s Hospital\, and serves on the Medical Advisory Board of the AHC Foundation\, linking mechanistic insights to patient care through precision diagnostics and targeted management of neurogenetic disorders. \nRegistration Link
URL:https://ahckids.org/event/ahc-and-epilepsy-clarity-and-confusion/
CATEGORIES:Upcoming Events,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250915
DTEND;VALUE=DATE:20250917
DTSTAMP:20260419T005156
CREATED:20250721T162300Z
LAST-MODIFIED:20250730T021510Z
UID:8547-1757894400-1758067199@ahckids.org
SUMMARY:ATP1A3 Symposium - September 15 & 16
DESCRIPTION:The 13th ATP1A3 in Disease Symposium will take place (virtually) on 15 and 16 September 2025  in Cairns\, Australia\, in conjunction with the  17th International Meeting on P-Type ATPases in Health & Disease \n\n\n\n\nThe Program of the 13th Symposium is set up to allow speakers and participants from  Australia and Asia Pacific \, but also  from all other parts of the world to join live or see the recorded sessions soon after the end of the streaming. There are two joint sessions with the 17th P-Type ATPase meeting that will be live-streamed from Cairns (15 Sep\, 18:00-19:30 AEST and 16 Sep\, 18:00-20:00 AEST). Here\, the time schedule of the Symposium. Warm welcome to delegates joining us virtually for the Symposium alone\, and to those joining in-person in Cairns\, Australia!Registration\nTo participate in the 13th Symposium\, you need to register on the site of the Conference https://iupab.org/atpase-conference-registration/. Early bird registration deadline is 25 July 2025.\n  \nUpdated Program NEW\nInvited Speakers NEW \nIf you have any issues or questions regarding registration and abstract submission\, please  email ronald.clarke@sydney.edu.au or  melody.li@florey.edu.au
URL:https://ahckids.org/event/atp1a3-symposium-september-15-16/
CATEGORIES:Upcoming Events
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250331T080000
DTEND;TZID=America/New_York:20250331T170000
DTSTAMP:20260419T005156
CREATED:20250331T195208Z
LAST-MODIFIED:20250331T200031Z
UID:8221-1743408000-1743440400@ahckids.org
SUMMARY:Family Fun in Cincinnati: A Perfect Getaway! 
DESCRIPTION:Looking for the perfect family vacation? Cincinnati is a hidden gem packed with unforgettable experiences for kids and parents alike! \n Explore & Learn – From hands-on exhibits at the Cincinnati Museum Center to the wonders of the Newport Aquarium\, every day is an adventure! \n Outdoor Fun – Take in the stunning riverfront at Smale Park\, ride the Carol Ann’s Carousel\, or watch the world go by on a BB Riverboat Cruise.  Kid-Approved Eats – Enjoy local favorites like Skyline Chili or grab a sweet treat at Graeter’s Ice Cream!  Sports & Entertainment – Catch a Reds game\, cheer on FC Cincinnati\, or explore the city’s vibrant arts scene. No matter what your family loves\, Cincinnati is full of adventure\, discovery\, and joy!  Have you taken a family trip here? Tell us your favorite Cincinnati memories! www.ahckids.org#AHCFamilyMeeting #KidFriendlyCincinnati #ExploreOhio \nSee less
URL:https://ahckids.org/event/8221/
CATEGORIES:Upcoming Events
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