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X-WR-CALDESC:Events for AHCF
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DTSTART;TZID=America/New_York:20260609T153000
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UID:9587-1781019000-1789059600@ahckids.org
SUMMARY:Family Circle is Going on Summer Break!
DESCRIPTION:AHC families and caregivers\, \nFamily Circle will be on summer break from June through August\, and we look forward to gathering again in September! \nWe. Are. Here. \nIf you’re looking for connection\, support\, or resources during the summer months\, please reach out to AHCF’s Family Support Team at heather@ahckids.org. \nWishing you a safe\, relaxing\, and joy-filled summer!
URL:https://ahckids.org/event/family-circle-is-going-on-summer-break/
CATEGORIES:Upcoming Events
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2026/06/Family-Circle-summer-break-e1781032888852.jpg
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DTSTART;TZID=America/New_York:20260728T190000
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SUMMARY:AHCF Webinar: What does your child's genetic test actually mean?
DESCRIPTION:Your Child’s AHC Genetic Results: What They Mean—and Why They Matter \n📅 Tuesday\, July 28\n🕖 7:00 PM EDT https://accountingdepartment.zoom.us/meeting/register/-sVoMJcKSkGgMuvXrLIuAg \nMany individuals with Alternating Hemiplegia of Childhood (AHC) have a change\, or mutation\, in the ATP1A3 gene—but understanding what those results mean can feel overwhelming. \nJoin us for a special webinar with Suzanne D. DeBrosse\, MD\, FACMG\, as she helps families better understand the genetics behind AHC\, what genetic testing can (and can’t) tell us\, and why these results matter for your loved one\, research\, and the future of genetic therapies. Whether you’re newly diagnosed or have been part of the AHC community for years\, this webinar will help make the science behind genetic testing more understandable. \nAbout our speaker\nDr. Suzanne DeBrosse is a clinical geneticist at University Hospitals Cleveland Medical Center and Associate Professor at Case Western Reserve University. Board certified in Pediatrics\, Child Neurology\, and Clinical Genetics\, she has served on the AHCF Medical Advisory Board since 2012 and has spent more than a decade caring for individuals with AHC while advancing research and education in the field. \n 
URL:https://ahckids.org/event/what-does-your-childs-genetic-test-actually-mean/
CATEGORIES:Upcoming Events
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2026/07/suzanne-headshot-for-AHCF-13-e1783963950539.jpg
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