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X-WR-CALDESC:Events for AHCF
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DTSTART;TZID=America/New_York:20251210T130000
DTEND;TZID=America/New_York:20251210T140000
DTSTAMP:20251118T180217Z
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UID:8820-1765371600-1765375200@ahckids.org
SUMMARY:AHCF Family Circle - You're Invited!
DESCRIPTION:Join us for our next AHCF Family Circle on Wednesday\, December 10th at 10am PST/ 12pm CST/ 1pm EST. \nThis is a support group for parents of individuals with AHC. Share your challenges and joys in this informal setting. Connect with others on this journey! \nIf you have questions\, please email Heather Gates at Heather@ahckids.org. We look forward to seeing you. \nJoin Zoom Meeting: https://us02web.zoom.us/j/85227963024 \nNeed a Reminder? \nSign up for text message reminders for AHC Family Circle at: https://www.remind.com/join/ahcfamily
URL:https://ahckids.org/event/ahcf-family-circle-youre-invited/
CATEGORIES:Upcoming Events
ATTACH;FMTTYPE=image/png:https://ahckids.org/wp-content/uploads/2025/10/AHC-Family-Circle-6-e1778021495433.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251119T130000
DTEND;TZID=America/New_York:20251119T140000
DTSTAMP:20251110T155245Z
CREATED:20251104T210429Z
LAST-MODIFIED:20251110T155245Z
UID:8738-1763557200-1763560800@ahckids.org
SUMMARY:“AHC and Epilepsy\, Clarity and Confusion”
DESCRIPTION:💜 Join us for a live webinar Wednesday the 19th @ 1:pm EST. Dr. Kevin Ess\, a leading neurologist in Epilepsy and Alternating Hemiplegia of Childhood (AHC) will share insights from the front lines of research and care — what’s next for families and the path to better treatments\, then answer your questions! \nDr. Kevin C. Ess’s research integrates molecular neuroscience\, human stem cell modeling\, and clinical neurogenetics to elucidate mechanisms underlying developmental and epileptic encephalopathies\, with a major focus on Alternating Hemiplegia of Childhood (AHC)\, ATP1A3-related disorders\, and tuberous sclerosis complex (TSC). His laboratory has studied how pathogenic ATP1A3 mutations alter neuronal excitability using patient-derived iPSC models\, contributing pivotal evidence of impaired Na⁺/K⁺-ATPase function and developing translational platforms for therapeutic discovery. \nClinically\, he is a pediatric epileptologist who founded and directs comprehensive rare disease programs\, including the AHC and TSC Clinics at Vanderbilt and Colorado Children’s Hospital\, and serves on the Medical Advisory Board of the AHC Foundation\, linking mechanistic insights to patient care through precision diagnostics and targeted management of neurogenetic disorders. \nRegistration Link
URL:https://ahckids.org/event/ahc-and-epilepsy-clarity-and-confusion/
CATEGORIES:Upcoming Events,Webinar
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20250915
DTEND;VALUE=DATE:20250917
DTSTAMP:20250730T021510Z
CREATED:20250721T162300Z
LAST-MODIFIED:20250730T021510Z
UID:8547-1757894400-1758067199@ahckids.org
SUMMARY:ATP1A3 Symposium - September 15 & 16
DESCRIPTION:The 13th ATP1A3 in Disease Symposium will take place (virtually) on 15 and 16 September 2025  in Cairns\, Australia\, in conjunction with the  17th International Meeting on P-Type ATPases in Health & Disease \n\n\n\n\nThe Program of the 13th Symposium is set up to allow speakers and participants from  Australia and Asia Pacific \, but also  from all other parts of the world to join live or see the recorded sessions soon after the end of the streaming. There are two joint sessions with the 17th P-Type ATPase meeting that will be live-streamed from Cairns (15 Sep\, 18:00-19:30 AEST and 16 Sep\, 18:00-20:00 AEST). Here\, the time schedule of the Symposium. Warm welcome to delegates joining us virtually for the Symposium alone\, and to those joining in-person in Cairns\, Australia!Registration\nTo participate in the 13th Symposium\, you need to register on the site of the Conference https://iupab.org/atpase-conference-registration/. Early bird registration deadline is 25 July 2025.\n  \nUpdated Program NEW\nInvited Speakers NEW \nIf you have any issues or questions regarding registration and abstract submission\, please  email ronald.clarke@sydney.edu.au or  melody.li@florey.edu.au
URL:https://ahckids.org/event/atp1a3-symposium-september-15-16/
CATEGORIES:Upcoming Events
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250331T080000
DTEND;TZID=America/New_York:20250331T170000
DTSTAMP:20250331T200031Z
CREATED:20250331T195208Z
LAST-MODIFIED:20250331T200031Z
UID:8221-1743408000-1743440400@ahckids.org
SUMMARY:Family Fun in Cincinnati: A Perfect Getaway! 
DESCRIPTION:Looking for the perfect family vacation? Cincinnati is a hidden gem packed with unforgettable experiences for kids and parents alike! \n Explore & Learn – From hands-on exhibits at the Cincinnati Museum Center to the wonders of the Newport Aquarium\, every day is an adventure! \n Outdoor Fun – Take in the stunning riverfront at Smale Park\, ride the Carol Ann’s Carousel\, or watch the world go by on a BB Riverboat Cruise.  Kid-Approved Eats – Enjoy local favorites like Skyline Chili or grab a sweet treat at Graeter’s Ice Cream!  Sports & Entertainment – Catch a Reds game\, cheer on FC Cincinnati\, or explore the city’s vibrant arts scene. No matter what your family loves\, Cincinnati is full of adventure\, discovery\, and joy!  Have you taken a family trip here? Tell us your favorite Cincinnati memories! www.ahckids.org#AHCFamilyMeeting #KidFriendlyCincinnati #ExploreOhio \nSee less
URL:https://ahckids.org/event/8221/
CATEGORIES:Upcoming Events
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