BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//AHCF - ECPv6.15.20//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:AHCF
X-ORIGINAL-URL:https://ahckids.org
X-WR-CALDESC:Events for AHCF
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251119T130000
DTEND;TZID=America/New_York:20251119T140000
DTSTAMP:20260421T120644
CREATED:20251104T210429Z
LAST-MODIFIED:20251110T155245Z
UID:8738-1763557200-1763560800@ahckids.org
SUMMARY:“AHC and Epilepsy\, Clarity and Confusion”
DESCRIPTION:💜 Join us for a live webinar Wednesday the 19th @ 1:pm EST. Dr. Kevin Ess\, a leading neurologist in Epilepsy and Alternating Hemiplegia of Childhood (AHC) will share insights from the front lines of research and care — what’s next for families and the path to better treatments\, then answer your questions! \nDr. Kevin C. Ess’s research integrates molecular neuroscience\, human stem cell modeling\, and clinical neurogenetics to elucidate mechanisms underlying developmental and epileptic encephalopathies\, with a major focus on Alternating Hemiplegia of Childhood (AHC)\, ATP1A3-related disorders\, and tuberous sclerosis complex (TSC). His laboratory has studied how pathogenic ATP1A3 mutations alter neuronal excitability using patient-derived iPSC models\, contributing pivotal evidence of impaired Na⁺/K⁺-ATPase function and developing translational platforms for therapeutic discovery. \nClinically\, he is a pediatric epileptologist who founded and directs comprehensive rare disease programs\, including the AHC and TSC Clinics at Vanderbilt and Colorado Children’s Hospital\, and serves on the Medical Advisory Board of the AHC Foundation\, linking mechanistic insights to patient care through precision diagnostics and targeted management of neurogenetic disorders. \nRegistration Link
URL:https://ahckids.org/event/ahc-and-epilepsy-clarity-and-confusion/
CATEGORIES:Upcoming Events,Webinar
END:VEVENT
END:VCALENDAR