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DTSTART;TZID=America/New_York:20260212T130000
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UID:9110-1770901200-1770904800@ahckids.org
SUMMARY:Parent University - Estate Planning
DESCRIPTION:All about estate planning 📄\nJoin Protected Tomorrows’ Parent University Class 2 for an informational session breaking down the different components of estate planning. In this class\, we will discuss:\n➡️ What are the components\n➡️ How to find the right attorney\n➡️ What needs to be updated and when\n📅 February 12\, 2026\n⏰ 12 – 1pm CDT\n💻 Zoom Webinar\n🔗Register TODAY: https://protectedtomorrows.com/…/2026-parent…/\nEven if you cannot attend the webinar\, register to receive an email with a link to watch the recording in the following week.
URL:https://ahckids.org/event/parent-university-estate-planning/
CATEGORIES:Upcoming Events,Webinar
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LAST-MODIFIED:20251110T155245Z
UID:8738-1763557200-1763560800@ahckids.org
SUMMARY:“AHC and Epilepsy\, Clarity and Confusion”
DESCRIPTION:💜 Join us for a live webinar Wednesday the 19th @ 1:pm EST. Dr. Kevin Ess\, a leading neurologist in Epilepsy and Alternating Hemiplegia of Childhood (AHC) will share insights from the front lines of research and care — what’s next for families and the path to better treatments\, then answer your questions! \nDr. Kevin C. Ess’s research integrates molecular neuroscience\, human stem cell modeling\, and clinical neurogenetics to elucidate mechanisms underlying developmental and epileptic encephalopathies\, with a major focus on Alternating Hemiplegia of Childhood (AHC)\, ATP1A3-related disorders\, and tuberous sclerosis complex (TSC). His laboratory has studied how pathogenic ATP1A3 mutations alter neuronal excitability using patient-derived iPSC models\, contributing pivotal evidence of impaired Na⁺/K⁺-ATPase function and developing translational platforms for therapeutic discovery. \nClinically\, he is a pediatric epileptologist who founded and directs comprehensive rare disease programs\, including the AHC and TSC Clinics at Vanderbilt and Colorado Children’s Hospital\, and serves on the Medical Advisory Board of the AHC Foundation\, linking mechanistic insights to patient care through precision diagnostics and targeted management of neurogenetic disorders. \nRegistration Link
URL:https://ahckids.org/event/ahc-and-epilepsy-clarity-and-confusion/
CATEGORIES:Upcoming Events,Webinar
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DTSTART;TZID=America/New_York:20231014T120000
DTEND;TZID=America/New_York:20231014T133000
DTSTAMP:20260421T040329
CREATED:20230927T210526Z
LAST-MODIFIED:20231003T200552Z
UID:6625-1697284800-1697290200@ahckids.org
SUMMARY:Webinar - Grief and Raising Special Needs Children
DESCRIPTION:Brad Thompson will lead what he calls a “guided dialogue” to explore the chronic nature of grief as it relates to families raising children with special healthcare needs. This will include the journey to acceptance of our situation and the challenges to that acceptance. It will also include the importance of finding real meaning in our lives as they are\, which is the key to living in hope.  We will also discuss the challenges to that acceptance and hope. \nWhen: Oct 14\, 2023 12:00 PM Eastern Time (US and Canada) \nRegister in advance for this meeting:\nhttps://zoom.us/meeting/register/tJUqfu-vrz4oG9x7pEFaivqH7Ypv2i6SOKtf \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nBrad’s Information\nBrad Thompson\, M.A.\, NCC\, LPC-S \nBrad has been married to Karen for nearly 37 years. They have two adult children – Justin and Hali . Justin is married to Monica (Sisneros) Thompson and they have blessed us with two grandchildren – Ella Grace and Weston Day. Hali deals with the challenges of multiple special needs\, both physical and cognitive\, and is the inspiration for their work. Brad & Karen have been providing marriage retreats for couples who have children with special needs since 2009. \nBrad is the Director of The HALI Project – a non-profit organization that provides counseling and education services for families who have children with special needs and the people who serve them. That work includes working with families\, the education system\, and the medical system. In 2018\, he became the Director of Counseling Services for the Turn Center – a pediatric therapy clinic in Amarillo\, TX that serves over 1\,000 children with special needs and their families across the Texas Panhandle. \nBrad has been blessed with many opportunities to serve in the primary care and special needs communities. Since 2008\, he has worked with and in primary care practices to improve quality of care\, provider efficiency\, family health literacy\, and patient/family satisfaction through the Hali Project’s Parent Partner Program. \nHe served on the Medical Home Advisory Committee for the American Academy of Pediatrics from 2004-2010. From 2011-2015\, he has served on an advisory committee for the Patient Centered Primary Care Collaborative. In 2017\, he was asked to lead the Family Support & Empowerment Program for the Child Neurology Foundation. Brad has served as CNF’s lead trainer for their Caregiver Support project since 2018. \nWhile we would never have chosen for Hali the challenges that she faces every day\, we feel incredibly blessed to share the lessons we have learned over 33 years with her to people across the country.
URL:https://ahckids.org/event/webinar-grief-and-raising-special-needs-children/
CATEGORIES:Webinar
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