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DTSTART;TZID=America/New_York:20260408T130000
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DTSTAMP:20260403T205508
CREATED:20260319T175235Z
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UID:9368-1775653200-1775660400@ahckids.org
SUMMARY:Live Q & A Webinar with Denise Potter\, RDN -  Ketogenic Therapy
DESCRIPTION:Bring your questions and join the conversation.\nDate: April 8th\nTime: 1:00 pm EDT\nRegister: https://tinyurl.com/bdex5x99\n\nJoin us for a special 𝗹𝗶𝘃𝗲 𝗤&𝗔 𝘄𝗲𝗯𝗶𝗻𝗮𝗿 𝘄𝗶𝘁𝗵 𝗗𝗲𝗻𝗶𝘀𝗲 𝗣𝗼𝘁𝘁𝗲𝗿\, 𝗥𝗗𝗡\, founder of 𝗔𝗱𝘃𝗮𝗻𝗰𝗲𝗱 𝗞𝗲𝘁𝗼𝗴𝗲𝗻𝗶𝗰 𝗧𝗵𝗲𝗿𝗮𝗽𝗶𝗲𝘀\, who brings over 𝟯𝟯 𝘆𝗲𝗮𝗿𝘀 𝗼𝗳 𝗲𝘅𝗽𝗲𝗿𝗶𝗲𝗻𝗰𝗲 𝗮𝘀 𝗮 𝗥𝗲𝗴𝗶𝘀𝘁𝗲𝗿𝗲𝗱 𝗗𝗶𝗲𝘁𝗶𝘁𝗶𝗮𝗻 𝗡𝘂𝘁𝗿𝗶𝘁𝗶𝗼𝗻𝗶𝘀𝘁 𝗮𝗻𝗱 𝟭𝟳 𝘆𝗲𝗮𝗿𝘀 𝘀𝗽𝗲𝗰𝗶𝗮𝗹𝗶𝘇𝗶𝗻𝗴 𝗶𝗻 𝗸𝗲𝘁𝗼𝗴𝗲𝗻𝗶𝗰 𝗺𝗲𝘁𝗮𝗯𝗼𝗹𝗶𝗰 𝘁𝗵𝗲𝗿𝗮𝗽𝘆.\nWhen epilepsy is part of AHC\, families are often told to try medication after medication\, but rarely offered ketogenic therapy early. Why wait? Join Denise Potter\, dietitian and founder of Advanced Ketogenic Therapies\, for this Q&A session exploring how ketogenic therapy works\, why it’s often misunderstood\, and how it may support not only seizure control but other neurologic symptoms seen in AHC.\n\n\nDenise will help families better understand:\n\n\n• How ketogenic therapy works\n• Why it is often misunderstood or overlooked\n• How it may support seizure control and other neurologic symptoms seen in AHC\n• The role of 𝗻𝘂𝘁𝗿𝗶𝘁𝗶𝗼𝗻 𝗾𝘂𝗮𝗹𝗶𝘁𝘆 𝗮𝗻𝗱 𝘄𝗵𝗼𝗹𝗲 𝗳𝗼𝗼𝗱𝘀 in metabolic therapy\n• How thoughtful nutrition planning can support 𝗴𝘂𝘁 𝗵𝗲𝗮𝗹𝘁𝗵 𝗮𝗻𝗱 𝗵𝗲𝗹𝗽 𝗮𝗱𝗱𝗿𝗲𝘀𝘀 𝗰𝗼𝗺𝗺𝗼𝗻 𝗰𝗼𝗻𝗰𝗲𝗿𝗻𝘀\n\n\nDenise’s work focuses on helping individuals and families access 𝘀𝗮𝗳𝗲\, 𝘀𝘁𝗿𝘂𝗰𝘁𝘂𝗿𝗲𝗱\, 𝗮𝗻𝗱 𝗿𝗲𝘀𝗲𝗮𝗿𝗰𝗵-𝗶𝗻𝗳𝗼𝗿𝗺𝗲𝗱 𝗸𝗲𝘁𝗼𝗴𝗲𝗻𝗶𝗰 𝘁𝗵𝗲𝗿𝗮𝗽𝗶𝗲𝘀 with personalized guidance and compassionate care.\n\n\nBring your questions and join the conversation.\n\n\n Date: April 8th\n Time: 1:00 pm EDT\n Register: https://tinyurl.com/bdex5x99\n\n\n\n\n\nDenise Bio:  \n\n\nWith over 33 years of experience as a Registered Dietitian Nutritionist\, and 17 years dedicated to Ketogenic Metabolic Therapy\, Denise has spent her career teaching\, training\, and supporting individuals and professionals worldwide. In recognition of her leadership in metabolic and brain health\, she was named an inaugural recipient of the Metabolic Mind Award from the Baszucki Brain Research Fund. She brings a deeply client-centered approach to her work and has a special passion for helping underserved populations access therapeutic ketogenic interventions safely and effectively. \nAdvanced Ketogenic Therapies grew from Denise’s recognition that many people were being told to “try keto\,” but few were given safe\, structured\, or research-informed guidance. She founded AKT to change that. Her vision was to create a place where clients could receive personalized plans\, thoughtful monitoring\, and compassionate support. She believes that when people are guided with clarity and care\, meaningful and lasting change is possible. \n\nAdvanced Ketogenic Therapies
URL:https://ahckids.org/event/9368/
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2026/03/Denise-Headshot.jpg
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DTSTART;TZID=America/New_York:20260416T120000
DTEND;TZID=America/New_York:20260416T130000
DTSTAMP:20260403T205508
CREATED:20260401T183648Z
LAST-MODIFIED:20260319T184336Z
UID:9376-1776340800-1776344400@ahckids.org
SUMMARY:Parent University – Let’s Get Clear Together On Government Benefits
DESCRIPTION:In this in-depth session about government benefits\, we will cover: \n\nCan you ever know everything about the benefits available to you and your family?\nHow do you know if you have applied for everything possible? We’ll be talking about SSI\, SSDI\, DAC\, Medicare\, Medicaid\, SNAP\, and more.\n\n\nWhen:\nApril 16\, 2026    \n12:00 pm – 1:00 pm\nClick Here to Register
URL:https://ahckids.org/event/parent-university-lets-get-clear-together-on-government-benefits/
CATEGORIES:Upcoming Events
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2026/02/Parent-University-e1770137631214.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260501T080000
DTEND;TZID=America/New_York:20260501T170000
DTSTAMP:20260403T205508
CREATED:20260304T162143Z
LAST-MODIFIED:20260304T162214Z
UID:9334-1777622400-1777654800@ahckids.org
SUMMARY:RARE Advocate Development (RAD) Brain Workshop
DESCRIPTION:We’re excited to share that the AHC Foundation has been invited to attend the RAREAdvocate Development (RAD) Brain Workshop this May in Boston! \n\n\n\nThis three-day intensive\, hosted by Global Genes\, the Rare Epilepsy Network (REN)\, and Mahzi Therapeutics\, brings together rare disease advocates who are actively accelerating research in their neurological conditions.\n\n\n\nFrom drug development and clinical trial design to regulatory strategy\, manufacturing\, and even drug repurposing\, this workshop is focused on building the knowledge and confidence needed to move therapies forward.\n\n\n\nWe’re honored to represent our community at this collaborative meeting at Alexion\, AstraZeneca Rare Disease\, and look forward to sharing key insights when we return.\n\n\n\nLearn more about the RAD Brain Workshop: https://globalgenes.org/rare-advocate-development-rad…/
URL:https://ahckids.org/event/rare-advocate-development-rad-brain-workshop/
CATEGORIES:Upcoming Events
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2026/03/foundation-focus-e1772532881254.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260924T080000
DTEND;TZID=America/New_York:20260926T170000
DTSTAMP:20260403T205508
CREATED:20260115T153305Z
LAST-MODIFIED:20260202T082055Z
UID:8849-1790236800-1790442000@ahckids.org
SUMMARY:14th ATP1A3 Symposium
DESCRIPTION:The French AHC Family Association (AFHA) is honoured and delighted to announce that the 14th ATP1A3 in disease Symposium will take place at the at the Pitié-Salpêtrière Hospital in PARIS\, France from Thursday 24th September to Saturday 26th September 2026. \nThursday\, September 24th\, 2026 will be for meeting associations and families concerned by ATP1A3 diseases. \n\nThe scientific meeting will be on Friday 25th and Saturday 26th September.\nDownload the Welcome letter by the  2026 Organising Committee
URL:https://ahckids.org/event/14th-atp1a3-symposium/
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2025/12/14th_symposium_on_atp1a3_in_disease_paris_2026_logo-e1764775968213.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270625T080000
DTEND;TZID=America/New_York:20270628T170000
DTSTAMP:20260403T205508
CREATED:20260107T155210Z
LAST-MODIFIED:20260403T131722Z
UID:8893-1813910400-1814202000@ahckids.org
SUMMARY:AHCF Family Meeting 2027 -  Bigger in Texas. Stronger Together.
DESCRIPTION:Thirty years ago\, The AHC Foundation brought families together because they needed more than support — they needed answers. That gathering became the Family Meeting\, and over three decades it has grown into a full-fledged conference grounded in research\, medicine\, and collaboration. \nAfter our most impactful meeting yet in Cincinnati in 2025\, we’re heading to Houston in June 2027 to continue what the AHC Foundation does best: connecting families\, clinicians\, and researchers to move care forward. \n📍 Houston\, Texas | June 2027\nBig Hearts. Strong Bonds. Together in Texas.
URL:https://ahckids.org/event/ahcf-family-meeting-2027-bigger-in-texas-stronger-together/
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2026/01/TexasFamilyMeeting1-e1767721782375.jpg
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