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DTSTART;TZID=America/New_York:20260416T120000
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SUMMARY:Parent University – Let’s Get Clear Together On Government Benefits
DESCRIPTION:In this in-depth session about government benefits\, we will cover: \n\nCan you ever know everything about the benefits available to you and your family?\nHow do you know if you have applied for everything possible? We’ll be talking about SSI\, SSDI\, DAC\, Medicare\, Medicaid\, SNAP\, and more.\n\n\nWhen:\nApril 16\, 2026    \n12:00 pm – 1:00 pm\nClick Here to Register
URL:https://ahckids.org/event/parent-university-lets-get-clear-together-on-government-benefits/
CATEGORIES:Upcoming Events
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DTSTART;TZID=America/New_York:20260501T080000
DTEND;TZID=America/New_York:20260501T170000
DTSTAMP:20260403T203222
CREATED:20260304T162143Z
LAST-MODIFIED:20260304T162214Z
UID:9334-1777622400-1777654800@ahckids.org
SUMMARY:RARE Advocate Development (RAD) Brain Workshop
DESCRIPTION:We’re excited to share that the AHC Foundation has been invited to attend the RAREAdvocate Development (RAD) Brain Workshop this May in Boston! \n\n\n\nThis three-day intensive\, hosted by Global Genes\, the Rare Epilepsy Network (REN)\, and Mahzi Therapeutics\, brings together rare disease advocates who are actively accelerating research in their neurological conditions.\n\n\n\nFrom drug development and clinical trial design to regulatory strategy\, manufacturing\, and even drug repurposing\, this workshop is focused on building the knowledge and confidence needed to move therapies forward.\n\n\n\nWe’re honored to represent our community at this collaborative meeting at Alexion\, AstraZeneca Rare Disease\, and look forward to sharing key insights when we return.\n\n\n\nLearn more about the RAD Brain Workshop: https://globalgenes.org/rare-advocate-development-rad…/
URL:https://ahckids.org/event/rare-advocate-development-rad-brain-workshop/
CATEGORIES:Upcoming Events
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DTSTART;TZID=America/New_York:20260924T080000
DTEND;TZID=America/New_York:20260926T170000
DTSTAMP:20260403T203222
CREATED:20260115T153305Z
LAST-MODIFIED:20260202T082055Z
UID:8849-1790236800-1790442000@ahckids.org
SUMMARY:14th ATP1A3 Symposium
DESCRIPTION:The French AHC Family Association (AFHA) is honoured and delighted to announce that the 14th ATP1A3 in disease Symposium will take place at the at the Pitié-Salpêtrière Hospital in PARIS\, France from Thursday 24th September to Saturday 26th September 2026. \nThursday\, September 24th\, 2026 will be for meeting associations and families concerned by ATP1A3 diseases. \n\nThe scientific meeting will be on Friday 25th and Saturday 26th September.\nDownload the Welcome letter by the  2026 Organising Committee
URL:https://ahckids.org/event/14th-atp1a3-symposium/
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DTSTART;TZID=America/New_York:20270625T080000
DTEND;TZID=America/New_York:20270628T170000
DTSTAMP:20260403T203222
CREATED:20260107T155210Z
LAST-MODIFIED:20260403T131722Z
UID:8893-1813910400-1814202000@ahckids.org
SUMMARY:AHCF Family Meeting 2027 -  Bigger in Texas. Stronger Together.
DESCRIPTION:Thirty years ago\, The AHC Foundation brought families together because they needed more than support — they needed answers. That gathering became the Family Meeting\, and over three decades it has grown into a full-fledged conference grounded in research\, medicine\, and collaboration. \nAfter our most impactful meeting yet in Cincinnati in 2025\, we’re heading to Houston in June 2027 to continue what the AHC Foundation does best: connecting families\, clinicians\, and researchers to move care forward. \n📍 Houston\, Texas | June 2027\nBig Hearts. Strong Bonds. Together in Texas.
URL:https://ahckids.org/event/ahcf-family-meeting-2027-bigger-in-texas-stronger-together/
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