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X-WR-CALDESC:Events for AHCF
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DTSTART;VALUE=DATE:20250915
DTEND;VALUE=DATE:20250917
DTSTAMP:20260404T032839
CREATED:20250721T162300Z
LAST-MODIFIED:20250730T021510Z
UID:8547-1757894400-1758067199@ahckids.org
SUMMARY:ATP1A3 Symposium - September 15 & 16
DESCRIPTION:The 13th ATP1A3 in Disease Symposium will take place (virtually) on 15 and 16 September 2025  in Cairns\, Australia\, in conjunction with the  17th International Meeting on P-Type ATPases in Health & Disease \n\n\n\n\nThe Program of the 13th Symposium is set up to allow speakers and participants from  Australia and Asia Pacific \, but also  from all other parts of the world to join live or see the recorded sessions soon after the end of the streaming. There are two joint sessions with the 17th P-Type ATPase meeting that will be live-streamed from Cairns (15 Sep\, 18:00-19:30 AEST and 16 Sep\, 18:00-20:00 AEST). Here\, the time schedule of the Symposium. Warm welcome to delegates joining us virtually for the Symposium alone\, and to those joining in-person in Cairns\, Australia!Registration\nTo participate in the 13th Symposium\, you need to register on the site of the Conference https://iupab.org/atpase-conference-registration/. Early bird registration deadline is 25 July 2025.\n  \nUpdated Program NEW\nInvited Speakers NEW \nIf you have any issues or questions regarding registration and abstract submission\, please  email ronald.clarke@sydney.edu.au or  melody.li@florey.edu.au
URL:https://ahckids.org/event/atp1a3-symposium-september-15-16/
CATEGORIES:Upcoming Events
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250619T080000
DTEND;TZID=America/New_York:20250621T170000
DTSTAMP:20260404T032839
CREATED:20250323T165815Z
LAST-MODIFIED:20250523T022702Z
UID:8154-1750320000-1750525200@ahckids.org
SUMMARY:Time is Running Out! Family Meeting 2025
DESCRIPTION:Last chance!  Don’t miss the opportunity to meet with the expert AHC community of providers and parents on June 19\, 2025. We have researchers\, treating physicians\, family support and more all speaking on the latest information\, and helpful tips and tricks\, regarding AHC. Please don’t miss this opportunity to spend time with other AHC parents\, and have your kids play or simply hang out with other AHC kids and adults. Moreover\, it’s the AHC Foundation’s 30th Anniversary and we are going all out to make this the best Family Meeting yet! Join us! \nMeeting Info & Registration Link
URL:https://ahckids.org/event/family-meeting-2025/
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2025/01/Family-Meeting-registration-2025.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250331T080000
DTEND;TZID=America/New_York:20250331T170000
DTSTAMP:20260404T032839
CREATED:20250331T195208Z
LAST-MODIFIED:20250331T200031Z
UID:8221-1743408000-1743440400@ahckids.org
SUMMARY:Family Fun in Cincinnati: A Perfect Getaway! 
DESCRIPTION:Looking for the perfect family vacation? Cincinnati is a hidden gem packed with unforgettable experiences for kids and parents alike! \n Explore & Learn – From hands-on exhibits at the Cincinnati Museum Center to the wonders of the Newport Aquarium\, every day is an adventure! \n Outdoor Fun – Take in the stunning riverfront at Smale Park\, ride the Carol Ann’s Carousel\, or watch the world go by on a BB Riverboat Cruise.  Kid-Approved Eats – Enjoy local favorites like Skyline Chili or grab a sweet treat at Graeter’s Ice Cream!  Sports & Entertainment – Catch a Reds game\, cheer on FC Cincinnati\, or explore the city’s vibrant arts scene. No matter what your family loves\, Cincinnati is full of adventure\, discovery\, and joy!  Have you taken a family trip here? Tell us your favorite Cincinnati memories! www.ahckids.org#AHCFamilyMeeting #KidFriendlyCincinnati #ExploreOhio \nSee less
URL:https://ahckids.org/event/8221/
CATEGORIES:Upcoming Events
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240928T140000
DTEND;TZID=America/New_York:20240928T150000
DTSTAMP:20260404T032839
CREATED:20240827T063403Z
LAST-MODIFIED:20240913T134710Z
UID:7299-1727532000-1727535600@ahckids.org
SUMMARY:Support Group for AHC\, Monthly Family Circle
DESCRIPTION:Join us for our next AHCF Family Circle on Saturday\, September 28th at 11am PST/ 1pm CST/ 2pm EST. This is a support group for parents of individuals with AHC. Share your challenges and joys in this informal setting. Connect with others on this journey! If you have questions\, please email Heather Gates at Heather@ahckids.org. We look forward to seeing you.\n\n\n\nJoin Zoom Meeting: https://us02web.zoom.us/j/85227963024…\n\n\n\nSign up for text message reminders for AHCF Family Circle at: https://www.remind.com/join/familyahc?utm_medium=ios
URL:https://ahckids.org/event/support-group-for-ahc-monthly-family-circle/
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2024/08/family-circle-image-e1724726190315.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240706
DTEND;VALUE=DATE:20240707
DTSTAMP:20260404T032839
CREATED:20240617T212149Z
LAST-MODIFIED:20240913T173436Z
UID:7172-1720224000-1720310399@ahckids.org
SUMMARY:Join the Freedom Run on July 6
DESCRIPTION:A 4th of July run for a cure benefiting Alternating Hemiplegia of Childhood Foundation.
URL:https://ahckids.org/event/join-the-freedom-run-on-july-6/
LOCATION:Edinburg Municipal Park\, 714 S. Raul Longoria\, Edinburg\, TX\, 78504\, United States
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2024/05/Freedom-Run-AHCF-NEW-e1715818050129.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Dubai:20240627T190000
DTEND;TZID=Asia/Dubai:20240627T200500
DTSTAMP:20260404T032840
CREATED:20240619T235207Z
LAST-MODIFIED:20240619T235515Z
UID:7203-1719514800-1719518700@ahckids.org
SUMMARY:Empowered Parenting: Thriving as a Single Parent Raising a Rare Disease Child
DESCRIPTION:The National Organization for Rare Disorders (NORD) invites you to join us for a comprehensive\, supportive\, and closed-door discussion about raising a rare disease child or children as a single parent. \nDate: Thursday\, June 27\, 2024\nTime: 7:00 p.m. – 8:05 p.m. ET\nLocation: Virtual via Zoom \nYou will hear from single rare parents about tools\, resources\, and information they have utilized to navigate the unique challenges of raising their kids. This session will offer strategies to help both you and your child thrive. Plus\, you will get to connect with other parents facing similar journeys and leave feeling empowered and equipped to tackle the challenges of raising a child with a rare disease with confidence and resilience. \nRegister for this Community Conversation here. \nWe encourage you to forward this invitation to others who might benefit from attending!
URL:https://ahckids.org/event/empowered-parenting-thriving-as-a-single-parent-raising-a-rare-disease-child/
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2024/06/NORD-single-parent-webinar-6-19-24.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240202T190000
DTEND;TZID=UTC:20240202T193000
DTSTAMP:20260404T032840
CREATED:20240115T013319Z
LAST-MODIFIED:20240115T013728Z
UID:6746-1706900400-1706902200@ahckids.org
SUMMARY:Warriors for Kathryn Quilt Raffle
DESCRIPTION:Kaleidoscope of Hope is the name of this year’s quilt to be raffled off at the Warriors for Kathryn event on February 2\, 2024\, in Cornersville\, Indiana.\n\n\n\nWarriors for Kathryn 2024 Quilt Raffle Information:\nQuilting tradition asks for a name to be selected for a quilt. “Kaleidoscope of Hope” is the name given to this year’s\nWarriors for Kathryn 2024 quilt with all proceeds going directly to AHC research.\n\n\n85” by 85” – King or Queen or Full (King coverlet with 6.5 in drop\, Queen Bedspread with 12.5 in drop\, Full Bedspread with 15.5 in drop)\n\nThe quilt top is a traditionally pieced (by machine) from a Sue Garman pattern called Stars for a New Day. There are a total of 4\,050 individual pieces in the quilt top. It uses a mix of batiks and prints- 100% cotton. The backing of the quilt is made from Moda 100% cotton and the double batting of Quilter’s Dream\n\n\nWool (washable and hypoallergenic) over Dream Poly\, both washable and hypoallergenic. ……made by Christine Marszalek\n\n\n\nTicket Information:\n• Online Raffle Ticket Sales will close at 1pm Eastern Time on the drawing day.\n• Tickets will be available at the event until 6:45pm Eastern Time.\n• Tickets cost $5 per chance.\n• Buy 4 tickets for $20 and get one free.\n• Each $20 gets you 5 tickets. (10 for $40\, 15 for $60\, 20 for $80….)\n\n\nTo enter the raffle and learn more about AHC\, go to:\nhttps://ahckids.app.neoncrm.com/eventReg.jsp?event=72&
URL:https://ahckids.org/event/warriors-for-kathryn-quilt-raffle/
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2024/01/QuiltRaffle-2024.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Indiana/Indianapolis:20240202T170000
DTEND;TZID=America/Indiana/Indianapolis:20240202T230000
DTSTAMP:20260404T032840
CREATED:20240115T012003Z
LAST-MODIFIED:20240115T013758Z
UID:6740-1706893200-1706914800@ahckids.org
SUMMARY:Warriors for Kathryn
DESCRIPTION:FRIDAY FEBRUARY 2\,2024 \n5PM \nExpo Hall – 2691 N. Park Rd. Connersville\, IN \nHelp support a worthy cause through Warriors for Kathryn at Expo Hall in Connersville! Follow the event page on Facebook at https://fb.me/e/3F5hfAh9p for more information on Wine Bingo\, Texas Hold’em\, Dinner\, Basket Raffle\, Quilt Raffle\, and more!
URL:https://ahckids.org/event/warriors-for-kathryn-2/
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2023/05/Event-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240131
DTEND;VALUE=DATE:20240201
DTSTAMP:20260404T032840
CREATED:20240115T012958Z
LAST-MODIFIED:20240115T012958Z
UID:6742-1706659200-1706745599@ahckids.org
SUMMARY:Valentine's Exchange 2024
DESCRIPTION:Hello AHC families! It’s time for the AHC Valentine’s Day card exchange. This started as a way to keep our children connected between family meetings (before social media). All ages can participate! Each child/adult sends a card to all participating. Some send a photo card\, handmade card\, stickers\, or drawing/coloring. To participate\, email your child’s name\, address\, and age to heather@ahckids.org by January 31st. A list of all participating will be emailed out to you by February 2nd.
URL:https://ahckids.org/event/valentines-exchange-2024/
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2024/01/ValentinesExchange2024.jpg
ORGANIZER;CN="Heather Gates":MAILTO:heather@ahckids.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231225
DTEND;VALUE=DATE:20231226
DTSTAMP:20260404T032840
CREATED:20230510T024518Z
LAST-MODIFIED:20230510T024518Z
UID:2725-1703462400-1703548799@ahckids.org
SUMMARY:Happy Birthday Joey!
DESCRIPTION:December 25\, 2023 \nJoey Hawk turns 11 today\, join us in wishing him a happy birthday and give the gift of hope for an AHC free future by donating to AHCF.
URL:https://ahckids.org/event/happy-birthday-joey/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231224
DTEND;VALUE=DATE:20231225
DTSTAMP:20260404T032840
CREATED:20230510T024554Z
LAST-MODIFIED:20230510T024554Z
UID:2727-1703376000-1703462399@ahckids.org
SUMMARY:Happy Birthday Daxton!
DESCRIPTION:December 24\, 2023 \nDaxton Douglas turns 3 today\, join us in wishing her a happy birthday and give the gift of hope for an AHC future by donating to AHCF.
URL:https://ahckids.org/event/happy-birthday-daxton/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231014T120000
DTEND;TZID=America/New_York:20231014T133000
DTSTAMP:20260404T032840
CREATED:20230927T210526Z
LAST-MODIFIED:20231003T200552Z
UID:6625-1697284800-1697290200@ahckids.org
SUMMARY:Webinar - Grief and Raising Special Needs Children
DESCRIPTION:Brad Thompson will lead what he calls a “guided dialogue” to explore the chronic nature of grief as it relates to families raising children with special healthcare needs. This will include the journey to acceptance of our situation and the challenges to that acceptance. It will also include the importance of finding real meaning in our lives as they are\, which is the key to living in hope.  We will also discuss the challenges to that acceptance and hope. \nWhen: Oct 14\, 2023 12:00 PM Eastern Time (US and Canada) \nRegister in advance for this meeting:\nhttps://zoom.us/meeting/register/tJUqfu-vrz4oG9x7pEFaivqH7Ypv2i6SOKtf \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nBrad’s Information\nBrad Thompson\, M.A.\, NCC\, LPC-S \nBrad has been married to Karen for nearly 37 years. They have two adult children – Justin and Hali . Justin is married to Monica (Sisneros) Thompson and they have blessed us with two grandchildren – Ella Grace and Weston Day. Hali deals with the challenges of multiple special needs\, both physical and cognitive\, and is the inspiration for their work. Brad & Karen have been providing marriage retreats for couples who have children with special needs since 2009. \nBrad is the Director of The HALI Project – a non-profit organization that provides counseling and education services for families who have children with special needs and the people who serve them. That work includes working with families\, the education system\, and the medical system. In 2018\, he became the Director of Counseling Services for the Turn Center – a pediatric therapy clinic in Amarillo\, TX that serves over 1\,000 children with special needs and their families across the Texas Panhandle. \nBrad has been blessed with many opportunities to serve in the primary care and special needs communities. Since 2008\, he has worked with and in primary care practices to improve quality of care\, provider efficiency\, family health literacy\, and patient/family satisfaction through the Hali Project’s Parent Partner Program. \nHe served on the Medical Home Advisory Committee for the American Academy of Pediatrics from 2004-2010. From 2011-2015\, he has served on an advisory committee for the Patient Centered Primary Care Collaborative. In 2017\, he was asked to lead the Family Support & Empowerment Program for the Child Neurology Foundation. Brad has served as CNF’s lead trainer for their Caregiver Support project since 2018. \nWhile we would never have chosen for Hali the challenges that she faces every day\, we feel incredibly blessed to share the lessons we have learned over 33 years with her to people across the country.
URL:https://ahckids.org/event/webinar-grief-and-raising-special-needs-children/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2023/05/Webinar_Banner-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230930
DTEND;VALUE=DATE:20231001
DTSTAMP:20260404T032840
CREATED:20230510T024934Z
LAST-MODIFIED:20230822T051220Z
UID:2734-1696032000-1696118399@ahckids.org
SUMMARY:Race to End AHC
DESCRIPTION:September 30\, 2023 \nAnnual virtual race to raise funds and awareness to end AHC.
URL:https://ahckids.org/event/race-to-end-ahc/
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2023/05/Event-9.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230622
DTEND;VALUE=DATE:20230626
DTSTAMP:20260404T032840
CREATED:20230510T024739Z
LAST-MODIFIED:20241029T143147Z
UID:2731-1687392000-1687737599@ahckids.org
SUMMARY:AHCF Family Meeting 2023
DESCRIPTION:June 22-25 \nEmbassy Suites \nGlendale Los Angeles\, California \nLearn More About Family Meetings
URL:https://ahckids.org/event/ahcf-family-meeting-2023/
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2023/05/Event-8.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230601
DTEND;VALUE=DATE:20230602
DTSTAMP:20260404T032840
CREATED:20230510T024623Z
LAST-MODIFIED:20230510T024623Z
UID:2729-1685577600-1685663999@ahckids.org
SUMMARY:Happy Birthday Sean!
DESCRIPTION:June 1\, 2023 \nSean Gerber turns 20 today\, join us in wishing her a happy birthday and give the gift of hope for an AHC future by donating to AHCF.
URL:https://ahckids.org/event/happy-birthday-sean/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240229
DTEND;VALUE=DATE:20240301
DTSTAMP:20260404T032840
CREATED:20230426T200030Z
LAST-MODIFIED:20240115T011750Z
UID:569-1709164800-1709251199@ahckids.org
SUMMARY:Rare Disease Day
DESCRIPTION:Join people around the world raising awareness for AHC and thousands of rare diseases. Share our Facebook and Instagram posts!
URL:https://ahckids.org/event/rare-disease-day/
LOCATION:square lorem\, Town Center Suite 1900\, Southfield\, AL\, 48075\, United States
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2023/04/Event-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230510
DTEND;VALUE=DATE:20230511
DTSTAMP:20260404T032840
CREATED:20230510T024419Z
LAST-MODIFIED:20230510T024419Z
UID:2723-1683676800-1683763199@ahckids.org
SUMMARY:Happy Birthday Kiley!
DESCRIPTION:May 10\, 2023 \nKiley Andrasco turns 22 today\, join us in wishing her a happy birthday and give the gift of hope for an AHC free future by donating to AHCF.
URL:https://ahckids.org/event/happy-birthday-kiley/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230214
DTEND;VALUE=DATE:20230215
DTSTAMP:20260404T032840
CREATED:20230510T024321Z
LAST-MODIFIED:20230510T024321Z
UID:2720-1676332800-1676419199@ahckids.org
SUMMARY:Valentine's Card Exchange
DESCRIPTION:February 1-14 \nAHCF parent\, Heather Gates\, and daughter Jocelyn\, host an annual Valentine’s Card exchange for people with AHC of all ages! \nEmail heather@ahckids.org to join!
URL:https://ahckids.org/event/valentines-card-exchange/
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2023/05/Event-3.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20230203T170000
DTEND;TZID=UTC:20230203T170000
DTSTAMP:20260404T032840
CREATED:20230508T170545Z
LAST-MODIFIED:20230726T223838Z
UID:1540-1675443600-1675443600@ahckids.org
SUMMARY:Warriors for Kathryn
DESCRIPTION:FRIDAY FEBRUARY 3\, 2023 \n5PM \nExpo Hall – 2691 N. Park Rd. Connersville\, IN \nHelp support a worthy cause through Warriors for Kathryn at Expo Hall in Connersville! Follow the event page on Facebook at https://fb.me/e/3F5hfAh9p for more information on Wine Bingo\, Texas Hold’em\, Dinner\, Basket Raffle\, Quilt Raffle\, and more!
URL:https://ahckids.org/event/warriors-for-kathryn/
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2023/05/Event-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230118
DTEND;VALUE=DATE:20230119
DTSTAMP:20260404T032840
CREATED:20230510T025130Z
LAST-MODIFIED:20230510T025130Z
UID:2737-1674000000-1674086399@ahckids.org
SUMMARY:International AHC DAY
DESCRIPTION:January 18\, 2023 \nJoin us as we spread awareness and raise funds to end AHC on the anniversary of the discovery of the gene that causes AHC: ATP1A3.
URL:https://ahckids.org/event/international-ahc-day/
ATTACH;FMTTYPE=image/jpeg:https://ahckids.org/wp-content/uploads/2023/05/Event-10.jpg
END:VEVENT
END:VCALENDAR