Parent University - Estate Planning
2026-02-12 13:00 - 14:00 (America/New_York)
All about estate planning 📄
Join Protected Tomorrows’ Parent University Class 2 for an informational session breaking down the different components of estate planning. In this class, we will discuss:
➡️ What are the components
➡️ How to find the right attorney
➡️ What needs to be updated and when
📅 February 12, 2026
⏰ 12 – 1pm CDT
💻 Zoom Webinar
🔗Register TODAY: https://protectedtomorrows.com/…/2026-parent…/
Even if you cannot attend the webinar, register to receive an email with a link to watch the recording in the following week.

🫀 Heart 2 Heart Webinar: Cardiac Care & AHC
2026-02-25 18:00 - 19:00
🫀Join AHCF for a heart-to-heart conversation with Dr. Andrew Landstrom, focused on the unique cardiac concerns faced by individuals living with Alternating Hemiplegia of Childhood.

Wednesday, February 25 @ 6:00 PM EST
Please click the link below to register for the event:
https://tinyurl.com/5863hv3z
Registration is required. All registrants will receive a confirmation email with the Zoom link.

This accessible webinar is designed for patients, families, and caregivers seeking clear, practical guidance and trusted insight.
During this webinar, participants will:
Learn about common cardiac concerns associated with AHC
Gain insight into cardiac evaluations and ongoing monitoring
Better understand what symptoms to watch for and what questions to ask
Participate in a live Q&A with Dr. Landstrom

Dr. Andrew Landstrom — a member of the 𝗔𝗛𝗖𝗙 𝗠𝗲𝗱𝗶𝗰𝗮𝗹 𝗔𝗱𝘃𝗶𝘀𝗼𝗿𝘆 𝗕𝗼𝗮𝗿𝗱— has been appointed 𝗜𝗻𝗮𝘂𝗴𝘂𝗿𝗮𝗹 𝗗𝗶𝗿𝗲𝗰𝘁𝗼𝗿 𝗼𝗳 𝗧𝗿𝗮𝗻𝘀𝗹𝗮𝘁𝗶𝗼𝗻𝗮𝗹 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵 at 𝗖𝗵𝗶𝗹𝗱𝗿𝗲𝗻’𝘀 𝗛𝗼𝘀𝗽𝗶𝘁𝗮𝗹 𝗼𝗳 𝗣𝗵𝗶𝗹𝗮𝗱𝗲𝗹𝗽𝗵𝗶𝗮 (𝗖𝗛𝗢𝗣)’𝘀 𝗖𝗮𝗿𝗱𝗶𝗼𝘃𝗮𝘀𝗰𝘂𝗹𝗮𝗿 𝗜𝗻𝘀𝘁𝗶𝘁𝘂𝘁𝗲, where he is launching a new Center for Heritable Arrhythmias.
This new role reflects his continued commitment to advancing care for individuals with genetic arrhythmia syndromes, including those impacted by 𝗔𝗛𝗖 𝗮𝗻𝗱 𝗔𝗧𝗣𝟭𝗔𝟯 𝘃𝗮𝗿𝗶𝗮𝗻𝘁𝘀.

AHCF Family Circle - You're Invited - 3/11/26
2026-03-11 13:00 - 14:00
Join us for our next AHCF Family Circle on Wednesday, March 11th at 10am PST/ 12pm CST/ 1pm EST.
This is a support group for parents of individuals with AHC. Share your challenges and joys in this informal setting. Connect with others on this journey!
If you have questions, please email Heather Gates at Heather@ahckids.org. We look forward to seeing you.
Join Zoom Meeting: https://us02web.zoom.us/j/85227963024
Need a Reminder?
Sign up for text message reminders for AHC Family Circle at: https://www.remind.com/join/familyahc

Parent University - Good Debt vs Bad Debt in Special Needs Trust
2026-03-12 12:00 - 13:00
Demystifying debt 💵
Join Protected Tomorrows’ Parent University Class 3 for a candid conversation regarding debt. In this class, we will discuss:
➡️Is there really such a thing as good debt?
➡️ When should you pay down debt?
➡️ Is there a creative way to use debt to fund a special needs trust?
📅 March 12, 2026
⏰ 12 – 1pm CDT
💻 Zoom Webinar
🔗Register TODAY: https://protectedtomorrows.com/…/parent-university…/
Even if you cannot attend the webinar, register to receive an email with a link to watch the recording in the following week.

The Caregiver’s Compass Training
2026-03-15 08:00 - 17:00
The Caregiver’s Compass is a free, four-week virtual course designed for parents and caregivers who want practical tools and meaningful connection.
Throughout this interactive series, caregivers will:
• Learn strategies for managing stress
• Strengthen communication skills
• Build tools to support mental wellbeing
• Connect in a supportive, community-centered space
Each live session is guided by licensed therapist Brad Thompson, offering expert insight in a compassionate and welcoming environment.
🗓 Register by March 15
🔗 Sign up here:
https://www.surveymonkey.com/r/CaregiversCompass
For more information:
https://tinyurl.com/3w3rkaz6

RARE Advocate Development (RAD) Brain Workshop
2026-05-01 08:00 - 17:00
We’re excited to share that the AHC Foundation has been invited to attend the RAREAdvocate Development (RAD) Brain Workshop this May in Boston!

This three-day intensive, hosted by Global Genes, the Rare Epilepsy Network (REN), and Mahzi Therapeutics, brings together rare disease advocates who are actively accelerating research in their neurological conditions.

From drug development and clinical trial design to regulatory strategy, manufacturing, and even drug repurposing, this workshop is focused on building the knowledge and confidence needed to move therapies forward.

We’re honored to represent our community at this collaborative meeting at Alexion, AstraZeneca Rare Disease, and look forward to sharing key insights when we return.

Learn more about the RAD Brain Workshop: https://globalgenes.org/rare-advocate-development-rad…/

14th ATP1A3 Symposium
2026-09-24 08:00 - 2026-09-26 17:00
The French AHC Family Association (AFHA) is honoured and delighted to announce that the 14th ATP1A3 in disease Symposium will take place at the at the Pitié-Salpêtrière Hospital in PARIS, France from Thursday 24th September to Saturday 26th September 2026.
Thursday, September 24th, 2026 will be for meeting associations and families concerned by ATP1A3 diseases.

The scientific meeting will be on Friday 25th and Saturday 26th September.
Download the Welcome letter by the 2026 Organising Committee

AHCF Family Meeting 2027 - Bigger in Texas. Stronger Together.
2027-06-25 08:00 - 2027-06-28 17:00
Thirty years ago, The AHC Foundation brought families together because they needed more than support — they needed answers. That gathering became the Family Meeting, and over three decades it has grown into a full-fledged conference grounded in research, medicine, and collaboration.
After our most impactful meeting yet in Cincinnati in 2025, we’re heading to Houston in June 2027 to continue what the AHC Foundation does best: connecting families, clinicians, and researchers to move care forward.
📍 Houston, Texas | June 2027
Big Hearts. Strong Bonds. Together in Texas.
